Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-27-2008, 09:42 AM #1
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Location: Yorkshire, UK
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ali12 ali12 is offline
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Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Heart Meeting With School About Me Returning Back To School

We had a meeting with the School on Wednesday about me returning back to School - I didn't go as i'm not feeling too good so just my mom went.

It went OK, the school seems to be a little bit more understanding about my condition. The School's just got a new nurse and my mom said she was really nice and a lot better than the old one and semt to want to know about RSD as she has never dealt with anybody suffering from it. The Nurse and my teachers also took the time to read up on RSD and watch the videos of the bad spasms in my leg and couldn't believe how bad this condition is.

The School want me to return for 1 and a half hours a day and then gradually build it up when I feel up to it. School said they would be lead by how I feel instead of them telling me what I should and shouldn't be doing this time as last time when I tried to go back to school last September it didn't go to plan as they were rushing things and not being that understanding. I want to try and concentrate on my chore subjects at the moment (Math, English and Science) and concentrate on the other subjects at a later date when I have caught up on all of the things I have missed out on. School said I could drop French as there is no way I will be able to pick things up after missing almost 2 years work. PE (Exercise) is out of the question so for that lesson they are going to arrange for me to do some catch up work from my chore subjects.

Because of my condition and struggles, my School has been allowed to have someone come in for at least 15 hours a week to try and help me. This person will carry my books, help me in classes such as Math because of my Dispraxia, help me concentrate, make sure no one picks on me because of condition etc. That should hopefully make things a bit easier for me as I wont have to carry all of my school books whilst either on crutches or in my wheelchair.

I will also be allowed out of lessons 10 minutes early with one of my friends so that I can take it easy and get to my next lesson in time. School's also going to be keeping my wheelchair in the nurses office so when I am having difficulty walking or in a lot of pain I can go and use it to make things easier.

The School want me to start back next Wednesday (the 1st), I can't believe how quick they want me to start!! I am soooo nervous and excited at the same time. Half of me says I am not ready physically and emotionally to go back to school but the other half of me says I need to go to school to have some normality back into my life. Both me and my mom didn't think I would be starting so quickly so we are in a rush to get all of my school things ready lol!I will start going to school 1 and a half hours a day and see how things go. If things don't go as well as we hope or I can't cope, I can get home tuition. I will also still continue to have Home Tuition on top of school to try and help me catch up.

My Teachers said my friends had been asking about me, that came as a HUGE schock as I haven't heard anything from them for almost a year. My best friend has broken her leg, my mom was like tell her to keep moving it lol !

The Psychologist at school was nice and my mom said she told her that I wanted to be a Psychologist or a PT when I'm older and she said that she would help me decide which subjects to take. I will see my Psychologist regullary once I return to school so that she can see how things are going, what I am struggeling with etc.

Well, i'm going to go and lay down - sorry for rambling, just wanted to let you all know how the appointment went.

Take care, Alison
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