Hi Denny,

I agree with you, if there are no clinical trials to support this drug to be used off label for pain it seems very risky. Have you asked your PM to provide you with the research to support his belief that this is the right treatment for you? Sometimes this type of research information is just not available on the Internet. You should definitely trust your instincts, perhaps even get a second opinion.

I hope you are well today.

MsL

Mslday, I am getting a second opinion next week. There is no way I was going this otherwise. If my gp thinks I should try it then I will take your idea & ask my pm doc for research information. If he can't produce any then they can forget it. There is no way I am doing this. Thanks you so much for the great idea. I love boards like this. You get so much help & information.It is invaluable.
big hug,
Denny

I'm glad I could help in some small way.

You are right these boards are very helpful. Personally I find this forum very supportive. I feel very isolated at times, partially my own fault, because I don't want to always be talking about my RSD to friends and family. I feel like a whinner so I just zip it up and put a brave face on. I don't even tell my husband everything because I don't want to burden him any more than he already is. He is so caring and loving but I see that he hurts right along with me.

This is a place I know I can come and get great information and talk to others who really do understand what I feel like.

Good luck with you appointment next week.

Big Hugs back!

MsL