Hi everyone - im having some conflicting diagnosis from dr's over the last 3 years or so and the latest dr thinks i may have CRPS, not TOS. I have had a physio and pain cons tell me they feel i have TOS! A rheumy and a neuro guy not have a clue whats wrong and now a vascular surgeon confusing me with another syndrome!

My question for you guys is: do CRPS patients always have the burning hot sensations and the sensitivity to touch?

I have neither which is why im fairly confused with this latest 'shot in the dark' from this new dr.

A brief list of my symptoms are (all on the right side):

Coldness in hand - and on/off in shoulder blade and arm.
Little finger tremors and feels very alien to me - tip goes purple/tingles if too
much activity - swells a little, puffy looking.
shoulder blade pain
neck stiffness
numbness on front of wrist and forearm - also recently on side side of face, just next to my mouth.
neck feels weak - head feels heavy - arm feels weak and useless (on and off)
muscle wasteage in wrist, padded part of thumb and collar bone.
pain in collar bone and up into front of neck

also (may be unrelated):

general bit of fatigue and frontal headaches
when walking the skin on both hands often feels tight - little hot too
little hairloss and scalp dryness - could be stress related tho?!

Triggers: bascially any use of the arms - low or high......reading, typing, carrying, driving etc.

I took an awkward fall down some stairs 6 months before all this started and was working a heavy typing office job too - my posture wasnt great - the pain was awful until i left the office job - it has changed slightly over the years but still bothers and hinders me on a daily basis.

I would appreciate any responses fromanyone with CRPS (hot or cold?, i understand there are 2 types?) who recognises these symyoms as CRPS....

Wishing everyone a good day!

Tracey