Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 04-06-2009, 05:19 PM #10
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dreambeliever128 dreambeliever128 is offline
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dreambeliever128 dreambeliever128 is offline
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Default Hi Tracy,

Have you seen a Thoracic Outlet Specialist.

I am thinking this is what you may need to do. I saw numerous Drs. and didn't get a diagnoses of TOS from any of them. My Physical Therapist are the ones that diagnosed me and sent the info over to my PCP who in turn sent me to a Vascular Surgeon in Denver. There are several there. I see Dr. Sanders. My PCP said he had only had 1 patient with TOS in his 20+ years back when I was diagnosed as did my PA. It took us 3 years to get a diagnoses for me.

There are also a lot of Drs. that donot believe in TOS. I ran into several of them. Neurologist are the worst about not believing. If they can't see it on an EMG then they don't want to accept the diagnoses. Most of the time it doesn't show up on EMG's at all.

I think also they could answer your question on RSD too. TOS Specialist are pretty up on both.

I wanted to say also that there is possibly TOS specialist in your area. They are few and far between.

Ada
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