Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-05-2008, 10:21 AM #1
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Below is the contact information for Dr. Rohr in Germany, Dr. Schwartzman sends his patients to him in Germany to have the Ketamine Coma treatment.

You can contact him directly and I do not believe that there is such a wait list as is with Dr. Schwartman. Costs are substantially less in Germany compared to the US and Mexico. I'm sorry I do not have the phone number handy. He does speak English but it was better to have my husband communicate with him in Germany directly on my behalf. I have not gone ahead with the Ketamine Coma treatment, but I will if things progress for the worse. Saarbrücken is close to Frankfurt.

Kilinikum Saarbrücken

Dr. med. Hans-Peter Rohr
Klinik für Anästhesie, Intensivmedizin
und Schmerztherapie, Abteilung Spezielle Schmerztherapie
Oberarzt
Winterberg 1
66119 Saarbrücken
Germany

Last edited by Mslday; 11-05-2008 at 06:09 PM.
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Old 11-08-2008, 04:02 AM #2
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I would be curious as to the costs for Germany. My research showed Germany was almost 2x the cost, and the wait is 1-2 years. Dr Kirkpatrick in Tampa, FL can push patients through the Mexico study pretty quickly, and Dr. Schwartzman keeps referring more and more to Mexico due to the delays in Germany.

The care in Mexico is out of this world, absolutely top notch, and Dr. Cantu is possibly, the nicest, most compassionate, loving and competent Doctor I've ever met in my life. I had heard and read such things about him before, but you can't really understand it until you are under his care. He gets it.

Mexico coma costs approx 32k (for the dr and hospital costs)
plus airfare, hotel, taxis, food for family

50k is a safe number + boosters following that which over 3 months (booster every 2 weeks) will cost you another approx. 10k-25k depending on how you do it.

It's expensive no doubt, but it's a frikken miracle treatment for the vast majority who've gone through it. I've witnessed it personally.


The above link will show you the pre and post coma videos of the patients who've done it.
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Old 11-08-2008, 01:21 PM #3
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I'm happy you had such a positive experience with the doctors and treatment in Mexico NSMD. Reading the patient information I have no doubt one would be in good hands. Are you an MD by chance?

Attached is a copy of the Patient info from Germany for those who are interested. Email and telephone numbers are on this document.

The costs according to my direct consultation in Germany in 2006 would be approximately 12,000 euros for the hospital & Dr costs, considering the current rate of exchange that puts the hospital bill just a little over 15,000 US dollars, depends on the exchange rate when you go. I do know from experience that hospital costs in Germany are substantially less less than in the USA as a private patient.

I have a hard time seeing how this would cost 50K even with an additional cost of boosters when retuning home.

MsL
Attached Files
File Type: pdf Patient-Info-Ketamine Germany.pdf (68.6 KB, 1126 views)
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Old 11-08-2008, 05:23 PM #4
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Interesting MSL, thanks for sharing that document.

The $12k euro quote, is that if you enter the study privately with the german doctors and hospital or if you go through Dr. S.

That is far less expensive than I was originally quoted/told.

As for Mexico:

32k - Dr's/Hospital stay (includes 1 free booster)

Variables:
How many family members are traveling with you. Lets assume 2-4.

Rooms: 100 night x 21 nights on average = 2100-4200 in lodging.
Food: 50-100 day for 2-4 people x 21 days = 1150 - 2100
Airfare: Many RSD patients need to fly first class - our airfare costs totaled 6,500 - for the various family members. At minimum on coach your looking at 1500 up to 6500 or so.
Taxis - Depends - 150-500 *incl airport to and from*

That's approx 45k right there...if you need to stay longer or need additional boosters, etc, costs climb. For us, we were in the mid 50's range for Mexico.

Boosters can range from 300-day to 2500 day.
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Old 11-08-2008, 07:58 PM #5
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Yes there are many variables to consider depending on an persons circumstances. Personally I would love to fly first class but I've learned many tricks for travel in coach.

That quote is direct from the source, I saw the dr's in Germany as a private patient. I did not go through Dr. S. although I was told I could be refered to him if I wanted.

Dr Rohr said that he knew thay were charging double elsewhere, it is a different medical system in Germany, combination public/private. No wait list for private patients.

The standard of care is very high as I'm sure it is with the dr's & staff involved in the treatment in Mexico. Ultimatley it boils down to what one is most comfortable with.

Did you have this done as a patient or are you a family member? I'd love to hear more about how it has helped. Is it a permanant remission?

Best

MsL
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Old 11-09-2008, 01:44 PM #6
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Hi,
Is it possible to self referred to the doctor in Germany and Mexico for the coma treatment?
Thanks,
Numb
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Old 11-09-2008, 03:27 PM #7
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I don't know about Mexico.

As for Germany we just emailed the Doctor directly and explained our situation. We were already planning to be in Europe so we made an appointment for a consultation during that visit.

If I had decided to go ahead with the coma treatment I would have had to have had all the pre-trail tests completed at home before I would have been accepted. I opted not to do the coma treatment at that time.

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Old 11-09-2008, 03:29 PM #8
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Dear All
I don't want to offend anyone and have no personal knowledge but the perception here in the UK is that Mexico is a dangerously un-regulated medical environment. Given our highly regulated system in the UK, we are horrified that drugs that can be bought over the counter in Mexico are only available on prescription in the UK.

I can only say that if I was going to risk a highly experimental procedure which put me in a coma for a week, I would want to be sure that it was being done in a well-regulated medical environment. Otherwise, I am not sure how it is possible to feel "safe".
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