Originally Posted by rsdno

Thank You for your kind words I got sick and barely came back much til 2011 I read your kind words but I only let people know I have had RSD since '68 so they know there is hope and it isnt terminal with me .
My feeling is the pain I had the last 44 years doesnt matter ,the pain I'm sharing with you gabbycakes and all others with rsd only matters in the present ,this moment is when we all feel the rSD pain and the other ways it hurts like in our loved ones thinking we are fakers or just weak a DOCTOR AFTER i WOULDNT get the scs or pump said "It probably burned out anyway" when i didnt wAnt hIS maChinEry (i have triEd it before juSt not for me)
i HOPe yOu cAn foRGIVE Me FOR WAITING SO LOnG TO GET BACK TO YOU gABBYCAKES apologies '
RSDNO

Originally Posted by rsdno

Thank You for your kind words I got sick and barely came back much til 2011 I read your kind words but I only let people know I have had RSD since '68 so they know there is hope and it isnt terminal with me .
My feeling is the pain I had the last 44 years doesnt matter ,the pain I'm sharing with you gabbycakes and all others with rsd only matters in the present ,this moment is when we all feel the rSD pain and the other ways it hurts like in our loved ones thinking we are fakers or just weak a DOCTOR AFTER i WOULDNT get the scs or pump said "It probably burned out anyway" when i didnt wAnt hIS maChinEry (i have triEd it before juSt not for me)
i HOPe yOu cAn foRGIVE Me FOR WAITING SO LOnG TO GET BACK TO YOU gABBYCAKES apologies '
RSDNO

Originally Posted by rsdno

Thank You for your kind words I got sick and barely came back much til 2011 I read your kind words but I only let people know I have had RSD since '68 so they know there is hope and it isnt terminal with me .
My feeling is the pain I had the last 44 years doesnt matter ,the pain I'm sharing with you gabbycakes and all others with rsd only matters in the present ,this moment is when we all feel the rSD pain and the other ways it hurts like in our loved ones thinking we are fakers or just weak a DOCTOR AFTER i WOULDNT get the scs or pump said "It probably burned out anyway" when i didnt wAnt hIS maChinEry (i have triEd it before juSt not for me)
i HOPe yOu cAn foRGIVE Me FOR WAITING SO LOnG TO GET BACK TO YOU gABBYCAKES apologies '
RSDNO

Originally Posted by Jimking

rsdno, my wife has had RSD for 10 years now. We are finding that most doctors seem not to deal with her especially when she refuses to have any and every kind of invasive procedure imposed on her. The most invasive treatments she's had has been ketamine and lidocaine infusions. She feels that the more invasive treatments will only cause wider spread of her condition over time. There is merit to this line of thinking I believe but the docs sure make it extremely difficult.