Quote:
Originally Posted by CZZ74
VF, Wow, so well written, thank you so much. I really do get exactly where you are. I can not belivie you are making that drive. The pain must be excurciated by the time you are home.I ve been in bed since Thanksgiivng after driving(riding) I dont drive anymore, wrapped in heat- tyring to end a massive flare. I cant imagine 100 miles a day.Your very realistic too, thank you for sharing this it will be so helpful to so many. Just a thought, have you read the Intractable Pain handbook? It is us, I have found it to be a very valuable tool. Also Baclofen has really helped me with spasms and the an30-45 minute chalrlie horses.Ttthank you again so muchh.CZ
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I know the ride is crazy. I forget that it makes me flare up. My family doesn't really get that part of it and I am in denial so I just do the drive. But what happens sometimes is I come home and go straight to bed to warm up hoping the pain will subside. I am hoping to move closer to work in the future. It would help a lot. Even on the getting up in the morning part. I am comforted to know someone gets where I am coming from. This stuff is just so wierd no one really gets it. I am sorry you have had to be in bed for the days since Thanksgiving. Did you get to celebrate with family before flaring? I have my cousin living with me and the past months my RSD friends have been just horrible and making things unbearable. The best way is to just go to bed hoping I will be better when I wake up. Thanks again.
12-01-2008, 03:23 AM
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