Originally Posted by loretta jewell

Hi CZ! hugs,

Thank you for writing back. I'm so sorry you have those awful painful lesions. Mine are really more like a rash, lots of small red dots in a pretty large are, actually several areas. My chest was an area about your size of lesion. Mine itch and skin gets like painfully raw. My chest is better, but now they are going up my spine.

Yesterday I saw my Dr. He manages my rsd and pain. I see him once a month. He is a neurologist, psychiatrist, and pharmacologist. From New York City, practiced there for years and now has a very limited practice and teaches. Now he is building two clinics. I asked him his opinion on HBOT. I know Diana A has a home unit. He explained how this treatment supplies the blood with 100% oxygen in pressurized chamber. Our RSD, in our case our body, especially hands and feet turn purple, bluish, mottled color because of lack of oxygen, from poor circulation. Didn't you try the HBOT or are you on that form of treatment. My Dr. is doing research in respect to the help for RSD patients. I can't wait to talk to him next appointment. I'm definetly going to try this. There is a RSD HBOT treatment center in Florida, I think it's Palm Beach, will need to look that up for sure. I just did a google search using HBOT and saw a website mentioning RSD as one of the disorders that they use it for.

The swelling I know goes with high blood pressure, RSD is an automic condition, which means involuntary organs are effected by RSD, like heart, lungs, kindneys, High blood pressure patients have to watch their salt intack. I don't use it at all, just what is naturally in foods and always choose low sodium or no sodium if have a choice. To me it makes sense if our circulation isn't good, we are going to retain more water than we should. I try to each fresh fruits and veggies and low sodium foods.

CZ, didn't you try the HBOT? To answer your question, We all suffer, having full body, is tough, but when I read about others like yourself having leisons, it sounds so bad. My Dr.
is really a stickler about working on how we react to stress. I use meditation, scented candles, calling old friends, We moved 10 years ago from Oregon. keeping in touch with friends here, and all of you on the forum. I love to read. Distraction is the only thing that helps, the pain meds aren't strong enough. We are having a weather front come in, and I feel like the flu. It's just so hard to get out of the house and even do an errand isn't it?
I really force myself to even get out of bed. My e-mail is out right now. Should be fixed next week. You can always PM me. Thanks for your interest, Take care, Loretta