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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Member
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Hi CZ and Loretta,
I'm not sure if you can answer this or not. But I have a question for both of you. First, I am not full body RSD. I have it in my left arm and now in my right. But, my question is - if you can remember back to before you were full body - if/when you got a scratch or cut from something (which is very painful) did you see a problem with it healing? I have scars that are red. Even if it's a scratch, it doesn't heal right. I'm assuming that this is the RSD. Any scratch that I get doesn't go away - no matter where it is. I have a scratch on the side of my nose that I got from my dog and it's still there - red - months after it healed. Did you have this before the lesions started? Thank God I haven't received any lesions yet. I hope this e-mail finds you having a good day... Atleast one good day... ![]() |
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#2 | ||
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Member
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Hi ,
I did go to the doc. She could not tell whether or not my face was swollen. I know it is. I have been feeling so terrible. My whole body hurt so bad. My back and spine are hurting me crazy. The pain was burning and radiate to my upper arms. I also have pain in front of my low thigh and calf. I do have intermittent back pain before but not to this degree. My question is how do i know whether or not my back pain is RSD related? About 5 to 6 weeks ago, i did have a very painful nerve block in my buttocks, therefore, i am wondering whether or not my RSD in my hands and feet have spread to my spine and back and legs and face. Take care and wishing you all have less pain and symptoms, Numb |
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#3 | ||
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Senior Member
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Hi numb,
My name is Loretta and I have RSD,12 years, full body or generalized as it is sometimes called. I'm sorry you have all these additional symptoms. Have you made a followup appointment with your Dr. since your block? I've not had a block before. it was 4 years I've read on this forum that blocks help some and others it can cause a spread of rsd. I would definetly get with my Dr. about your symptoms. I certainly hope it isn't spread. Have you ever tried massage therapy. I can calm your system down. Try everything you can to stay calm and relaxed. Music? Buble Baths, Candles, lotions, comedy movies. Meditation, photo albums of fun vacations and memories. You could be having a flare, has the weather changed, I had the stomach flu last week, and hurt everywhere. Please let us know what the Dr. says. And don't let them try to tell you RSD doesn't spread. IT DOES. Take care and please write us. Loretta |
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#4 | ||
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Senior Member
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Hi dealing with tos,
Greetings, I'm sorry you are dealing with RSD too. That's not good with it moving into your right arm. That's what happened to me. Started in left arm shoulder day following surgery. then over a year later moved to right hand shoulder. Both shoulders were frozen and had extensive pt and massage therapy. Yes, I have a cat with her claws. Since RSD affects our circulation system, we don't have the advantage of adequate or normal blood supply which carries oxygen to the injury site to heal properly. That's why I want to try the HBOT treatment center. It's all about getting 100% oxygen to our tissues to promote healing. It's used with a lot of different wounds and disorders. I haven't been researching long, but there are at least a couple on this forum that use it regularly and get relief from it. I hope this helps some, My Dr. I saw yesterday is doing more research on it as regards to its effectiveness for RSD. Take Care, Loretta |
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