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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-08-2006, 10:30 PM | #1 | |||
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Magnate
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This might not be a subject the men won't want to talk about but I know some men deal with IC so they do deal with pain in that area.
I see this Surgeon Tuesday and I am having such a hard time hanging on. I have gotten worse over the past few weeks and I also deal with nausea when I am at my worst. I have thought about going to the ER but we have one of those ER's that don't know what to do for anyone. My only hope there would be to catch my ex PA there. He knows my history but again I don't know what they would do for me. I have a patch on my lower left pelvic area. It isn't doing what it use to do that's for sure. I have dealt with this for over 4 years and as I've got more help for my IC and other problems I can tell now where I have this other problem at. I'm thinking adhesions my Dr. thinks as I said before Pelvic Congestion Syndrome. It is as I said driving me crazy. Bill is having to do more for me in and out of the home, I can't hardly get dressed and yes my depression raises it's ugly head at times when I am in so much pain I'm delirous. I run my fingers through my hair in discust I guess you'd call it. I wish I were a Dr. I'd do my own damn surgery. LOL Funny but not kidding. I guess I just needed to vent. If I weren't getting councelling to keep me in check until I see this surgeon I'd probably go barging into the ER crying and screaming. I just needed to talk about this. I can't get anything done. When a person is in too much pain they can't think straight. I'm not. I haven't been getting dressed because of it, I pull my hair up and pin it up without combing it and I can't concentrate to take care of business. Does this sound familiar to any of you. I think of that TV show, Just Shoot Me, that's my feelings at this point. LOL Sorry if I rattle on, I think I'm trying to outdo jose on this post or Dana. How'd I do. I could be on my death bed and I'd have a sense of humor so don't panic. I'm still holding on by a thread. You guy could give me some encouragement here. I'm not giving myself any at this time. Thanks to all of you and sorry if I'm getting off the forum subject here but I really needed to ven. Ada |
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11-08-2006, 11:27 PM | #2 | |||
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Member
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Ada Honey you hang on! Were always here for you. There is nothing you could ever be going through that would ever turn us off. We are always here for you my dear. I can only imagine how challenging it must be for you. I will have you in my thoughts and prayers that everything will be A-Okay!!! You are one of the sweetest people I know. It is your turn for a break from all this discomfort. I suspect it will be very soon. I am sending you nothing but truck loads of good vibes. And anyone else who needs some I have plenty more fo them too. Chin Up Sweetie! xoxo
Love Mark
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. . "MY MOMMA SAID THERE'D BE DAYS LIKE THIS!!! . |
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11-09-2006, 01:55 AM | #3 | |||
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Senior Member
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Ada -
I have been meaning to post this link for a while now. Check out the site of Johns Hopkins' Study of Chronic Pain Syndromes in Women. http://www.neuro.jhmi.edu/PelvicPain/home.html I think you and others may find it to be of interest. Good luck. Mike |
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11-09-2006, 05:21 PM | #4 | |||
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Magnate
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It's interesting that 2 guys answered me but I'm glad. It shows strength in character.
Thanks for the info mike. It covers a lot of things that I have delt with and am dealing with. I have had good medical care for this and at times I think we are getting somewhere. I found a great Urologist and he has been treating the IC for about a year and before that I had his partner who I didn't like but his PA treated me for 3 years. They just couldn't find any meds I wasn't allergic too. They even tried a test on me to see if I really was allergic to the meds and I was. It proved I wasn't crazy. I am not much better today but I am popping pain meds to try and calm it down and I talked to my councellor yesterday evening and he keeps telling me to hang on until Tuesday. This problem here is something that started about a year ago and it's progressively gotten worse. I can't even function normally because of it. Of course I wasn't doing a very good job before. LOL Thanks for all of the support. I'm doing my best to hang in there, I just hope this surgeon is a good one. We live in an area where we are known to have the worlds worst specialist. This one is fairly new in town though so I'm hoping he is different. Thanks again, ADA |
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11-09-2006, 09:11 PM | #5 | |||
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Member
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ada,
sorry i haven't posted sooner.....i AM glad to see u here!.....hands have bben bad so mostly i'm lurking. i have no info on this topic, i just wanted to say 'hi' and tell u that i think of u often.....there r SO many antique shops and flea markets aroun here, and they r reminders of your love for that kind of thing. hope u get some helpful answers. liz |
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11-09-2006, 09:58 PM | #6 | |||
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Co-Administrator
Community Support Team
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Ada ,
i wish you the best of luck with the surgeon and hope they get some help and answers for you.
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