Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-01-2008, 01:01 AM #1
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Quote:
Originally Posted by beachedsiren View Post
I am new so please bare with me. New to such a group and the posting too. I still can't figure out how to post a new question!

But to respond to your question, I had minor hip surgery after the dx of CRPS in the lower, right leg. I did not know of any of the pre-procedure techniques several of you mentioned and therefore had none performed. Maybe I'm just lucky or it just hasn't decided to spread from the leg to the thigh - yet. It have been over 6 months and so far so good. I distract myself from even the thought of spreading.

However, I agree with some of the stated opinions that unless it is really, really necessary it be probably best not to take the risk. CRPS/RDS is too fickle a disease to play a game of chance.

Best Regards

Beachedsiren
Here is the main page link of the RSD forum -
http://neurotalk.psychcentral.com/forum21.html

To make a new thread look for the "New Thread" button above and below the list of threads.
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loretta (07-11-2009)
Old 12-09-2008, 02:38 AM #2
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I've had rsd for over 8 years and had a hysterectomy last June, where they hooked me up to a ketamine drip at the start of the operation, which I stayed on for 7 days, and I also had the morphine button for 3 days, and endones as needed. As a result, my pain levels stayed pretty low while I was in there and the surgery didn't affect my rsd.

Also I had a c/section with a spinal block 2.5 years ago (no ketamine) and that didn't worsen my rsd in the longterm, either. I did have a flare up after the operation and was on continual endones afterwards for about a month, but the rsd didn't spread or stay at that level long term.

If you can get your pain specialist to work with your other specialist you'll get the best outcome. For my hysterectomy, my pain specialist and his team were in charge of all my pain medications and so the nurses and other doctors had to answer to them, rather than my gynocologist. If I asked for 20mg of endone instead of 5mg, they gave it to me no questions asked, as they knew my pain is different to what you'd normally get after that operation.

I'm sure that all their preventative measures stopped my rsd from spreading or getting worse. I wouldn't have had the operation if I wasn't totally confident that they'd give me whatever pain relief I needed, and I'm very relieved and grateful it all went so well.

I hope it all goes well for you, too

x Kate
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Old 12-09-2008, 12:50 PM #3
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Hi.

I also have RSD and have had 2 major surgeries. I needed my tonsils removed for medical reasons and just had a spinal cord stimulator implanted. For both surgeries, the only spreading I saw was in my other arm - I think because of the IV's. Otherwise, I didn't have any specific issues of spread.

I do realize that everyone is different. It is very individual and there is no way of predicting.
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