Thanks for the concern hun...I am doing okay...Just trying to hang in there. Happy Turkey Day! Hope Reed is doin OK...Give him my best.

I am sure the spasms are RSD related, but I am not a doctor. My whole body jerks so bad that I keep my husband awake...

A great script for that is Baclofen..Ask his PM for that...It's the best for RSD spasms. Hope this helps sweetie!

Heather

Hi Nopainever,

I also had that problem with urination but it just seemed to go away. At that time I was doing 5 day ketamine procedures with boosters and I think that had alot to do with it. Right now and for the past year I haven't had any problems and my last ketamine booster was January 08.
Thanks for the post. I never heard of anyone else having this problem.

Thanks again,

Gabbycakes

Thanks Heather and Loretta,
Reed is doing better. We asked his PM doc about baclofen and he didn't seem really receptive. As a matter of fact, he didn't seem like he wanted to talk about much of anything. I'm hoping that he was just having a bad day, and that he isn't going to turn Reed out now that he has had his SCS and there aren't any more procedures to be done. I'm sure I'm just being paranoid.
Hope everyone had a fantastic Thanksgiving, I know I ate way too much! Hugs to you all!!

Don't give up Rita...Hang in there! SCS is not the END for sure. Sounds like your PM is at the end. Maybe you need to find someone new. I know that is exhausting, but there are compasionate doctor's out there. I had to move back from Las Vegas to Orange County to get my RSD back on track. But it was worth it.

Good Luck. Keep us Posted!

Heather

Mine ended too and I don't remember why, but I think it was my body adjusting to the Fentanyl Patch....

Thanks for responding...

[Thanks Heather,

I remember mine was getting so bad I had to push on my stomach at one point and then slowing it also just went away. Very weird. Thanks for responding.

Gabbycakes.




QUOTE=nopainever;415875]Mine ended too and I don't remember why, but I think it was my body adjusting to the Fentanyl Patch....

Thanks for responding...[/QUOTE]

Hi there
I also have problems with urination but I think they are a direct result of RSD symptom edema.. when my lower body swells up I can't seem to go without alot of pushing and similar dificulty as you all described.. but after the swelling goes down the next day or after elevating lord help me if I sneeze cause it's like my muscle there is dysfunctional and allows far too much leakage post swelling for my liking.

I have missed you guys, moved to another city, I am expecting a grandbaby any day now.. other than that things are the same for me.

hugs all,
Sandra

Hi Hi Hi Sandra! Congrats on the grandbaby! I haven't been on in awhile either, but I am back.

Glad to see you Woman! Missed you too!

My Baby Turns 1 Tomorrow!!! YaY!!!

Love ya,
Heather