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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Ok, what I think I am hearing is that your doc did nerve blocks before your TOS surgery?
That is great !!!! It should keep the RSD at bay and help prevent spread. I had a lumbar block prior to my knee surgery and my knee is RSD free- pain free another story ![]() Are they wanting to do more ? Does someone other than yourself think you are in sympathetic overdrive? How long post op are you ? If you would like to PM me on this please do. I had ribresections on both sides so I am, quite familiar with this territoty. Best of luck try to relax a little ... ![]() GnP |
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![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() Last edited by flippnout; 02-23-2007 at 02:36 PM. |
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#3 | ||
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Ok , one more question..
Do you already have RSD in the TOS affected limb?. I can certainly understand why you are brief and to the point after what you have just been through ![]() I know some people who have a quick resolution of their symptoms post op and others whose recuperations are slow and drag on and on.I was in the latter category but there were several other reasons for that despite having a great surgeon x2. One of the oh so many problems with the combination TOS RSD diagnosis is that so many of the symptoms overlap.It IS often difficult to know one from the other. Many people however without RSD in the affected limb ,and without a history of RSD, do develop RSD after a ribresection/scalenectomy.It is a rather common occurence as the stellate ganglion centre is so mangled ( sorry docs ) during surgery. As you are seeing your doctor so soon why don't you discuss your concerns with him/her? I would certainly consider erring on the side of caution. If it walk and talks like a duck maybe just maybe it is one . And ,if you have a legitimate chance of taking this bull by the horns and getting rid of it before it rears it's ugly head in another part of your body without too much physical harm to yourself( blocks aren't that bad)- I personally would JUMP ,RUN at it. You do bring up a great point that it may be too soon to tell .And your doctor may just agree with you. However if it were me.I would rather have a block for nothing than RSD for a lifetime. Much peace GNP |
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![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() ![]() Last edited by flippnout; 02-23-2007 at 02:36 PM. |
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#5 | ||
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Hi Flippn'
I wish other's would add their 2 cents worth but that is up to them. I did edit my first response to you due to my own confusion on the matter so you might want to have a reread. I have had sympathectomies post TOS surgery and I have had several to many blocks subsequent to them, so I am not sure why you think there is a problem with having both procedures unless it has something to do with workmans comp. Having said that I think discussing all this with your doctor is the best way to go.You have alot on your plate and having a soundind board that you trust to go over all of this with is a very good idea. Physios are great at what they do but they are not diagnosticians and should not be confusing their role( and you) in your recovery. Take that journal (so glad you are keeping one ![]() ![]() Good Luck Much peace GnP |
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#6 | |||
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Quote:
But I do agree he needs to discuss this with his doctor...and even with another one, for second and perhaps third opinions. Cant hurt.
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Hugs, LisaM ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ right Side TOS Decompression Surgery 12/2005 RSD Exacerbated after surgery Still have TOS on left side RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist |
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#7 | |||
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Sorry to bump up I forgot I posted this LOL yes I did talk to my doc and still do see him I just wanted to know of others out there.
Frogga sorry it did not work for you, I think I have half of pain managed by the procedure and also TOS surgery with rib removed and my meds. What I worry about is my future it was spelled out to me, what do you guys with the procedure found out what is going on with your bodies? side affects so on? I know it may come back and bite my butt worse, or not I do have side affects from the procedure also. I just want others two cents...THANK YOU. |
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