that's right!!! my friend ashley, who's 18 and had RSD for like 10 years, started a non profit org. putting on concerts to raise money to help those with RSD and to help in finding a cure. She was flown yesterday to New York to be on the Tyra Banks show about teenagers who have started their own businesses. This means that RSD will FINALLY be talked about on a highly watched show!!!! So keep your eyes open for it! When I know when it'll be aired I'll let you all know!

Andrea,
Thanks for the news. Keep us posted. It has been a while since we have spoken. How are you?
I am still treating in my HBOT chamber and although not without pain, I am doing much better than I expected.
Take care,
Di

it'll be aired the 15th

Andrea, thank you so much for posting this! I have spoken to Ashley quite a lot and know she will do a great job and make us all proud. We don't have Tyra in the UK but am going to try and watch it on the internet if I can. Thanks again!

I want to thank you and your friend for this. I am so glad that somebody is (in the talk show part) going to air this. We all needed this kind of break so maybe it will be known by other people what rsd is really like. It is something that nobody in my state has even heard of(my state is Iowa). Rsd is that rare and now maybe people will finally get it and maybe this will be the first airing and others may want her on their show so maybe it will get better known about. I can't thank you enough. I have been fighting rsd for almost 7 years. Thank you for everything. Take care.

Sincerely,
Tracy(Screwballpookie)

yea its about time!!!!!!!!!!!!!!!!!!!!!!!!!

That was 2 years ago.......