Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-10-2008, 02:10 PM #1
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Ooo Forgot one question

I am feeling very tired lately. All I want to do is sleep. Yesterday my daughter was home because her school was canceled and all I did was sit in the rocking chair and take about half hour to 45 minute naps off and all day. Is that part of rsd or my meds or what? I am so wiped out and don't feel like doing anything anymore what can I do to help myself? any opinions.

Sincerely,
Tracy
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Old 12-10-2008, 04:28 PM #2
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Even without CRPS people can have off days when they are tired. It could be the CRPS or the medication side effects (only likely though if you have just started a new drug) or it could be nothing at all. I wouldn't worry about it - it is only a problem if it starts to affect you on an ongoing basis or becomes a significant detriment to your quality of life. Then you should seek medical advice. The more you worry, the worse it will make your symptoms so it is best to roll with it and see how things go. Take care.
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Old 12-10-2008, 05:46 PM #3
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Default Hi Tracy,

I just posted in the Skelaxin thread to you. The Skelaxin just completely wiped me out. It could very well be that. IT made me feel wiped out. You might want to talk to your Dr. about it. After I went off of the Skelaxin it still took me a few days to even be able to function.

Ada
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Old 12-11-2008, 08:01 AM #4
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I also feel really tired a lot also. Even when I have slept quite a lot, I still don't wake up feeling refreshed and always feel drowsey and not ready to start the day. I mentioned it to my Pain Management Doctor and he told me that he thinks (however he cannot be certain due to the RSD/CRPS) that I also have Fibromyalgia, which causes fatigue and other symptoms.

If your doctor hasn't mentioned Fibro to you before, I would look up the symptoms and mention it to your doctor and see what he/she says. I read an article on the internet that said that most people with RSD, also suffer from Fibro so it could be possible that that is what you are experiencing.

Take care and I hope you feel better real soon - please keep us updated when you can.
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Old 12-11-2008, 10:02 AM #5
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Default Rip Van Winkle

My typical day is:

1 Get up and get ready for work.

2. Put in my regular 8-1/2 to 10 hour day (government work - what can I say?)

3. Come home and nap for two hours.

4. Have dinner with my dinner pills

5. Nap for another two hours

6. Have "bedtime pills" and go to sleep until it is time to start over

This has been almost every day for the past 7 months except for the days I am too exhausted to go to work. The first time it happened, I was so 'dead to the world' that my wife took me to the ER. I believe that it is the Humira I am taking for Rheumatiod Arthritis. The manufacturer and several doctors have researched this and claim that this is not a know side effect, but it always gets worse about 24 to 36 hours after each injection.

My rheumatologist thinks there may be an unusual inter-action with the oxycodone or some other drug I am taking. This may be the same with you. Keep asking your docs and make sure they know EVERYTHING you are taking. Even some over-the-counter meds can have inter-actions.

Hope you get to the bottom of this.

Signed,

Rip Van Winkle (Mike)
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Old 12-12-2008, 05:04 PM #6
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Default Meds I am on

Thank you all for responding. It all is so helpful for me to have you guys and gals here to help me out. The meds I am on are as follows: Cymbalta, Lyrica, Skelaxin, Xanax XR, Ambien, Daily vitamin and calcium supplement. I also have a scs implanted. I have not been told anything about fibromalgia. My pain doc the last time I seen him seemed as if he just wanted to brush me to the side. When I went to see him and told him of my new pain he just told me he didn't think it could be my rsd that it is very rare that rsd spreads so we will send you to an orthopedic Surgeon. I am just not to pleased with his attitude. We will see what he says when he gets the ortho report on whether he will send me to a neurosurgeon or not. Hopefully I find out Monday or Tuesday. So I guess it is just a wait and see game again. Yes I am still feeling pretty tired all the time and I don't like that feeling. I want to have more energy so I can at least clean my house. Thanks again and i will keep you all updated.

Sincerely,
Tracy
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Old 12-13-2008, 04:56 AM #7
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Tracy,

I'm sorry that you are still experiencing these symptoms, I know how awful it is when we have little or no energy so I really feel for you and everyone else that has to cope with it . I would definitely speak to your Doctor about the possibilty of having Fibromyalgia - when I told my PM Doctor about my symptoms (drowsiness, fatigue, muscle aches all over), he did some "trigger testing", which is where they press down on your muscles over your shoulders and if you jump, they know that you have pain there. My Doctor told me that I probably did have Fibro but he couldn't be 100% certain - he explained that most people with RSD will develop another underlying illness.

I'm sorry that your PM is telling you that RSD doesn't spread . If you haven't done this already - I would go onto websites about RSD and find all articles that say that RSD does spread and print them off and then see what he says. I know for a fact that RSD DOES spread - it's spread from my left leg to my right arm and my doctor was the first to diagnose me thankfully!!

I really hope you can get things sorted soon and please know you are in my thoughts and prayers. Also, one other thing that might be worth checking out is the side-effects to all of your meds, I know that they can sometimes cause drowsiness.

Take care. Alison.
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