Dear RSDno,
Wow, you are one brave person to have lived with this monster for so long and the after effects of trying to end your life. I don't know how you do it. You are my hero! I did want to die the first year of having this (over five years ago) because the pain was so intense and I had lost so much instantly the first year but then I started praying and realized that God left me here for a reason and each day I try and figure out what it is. RSD affects each one of us in different ways. I am almost quite sure an ME would never put a person passed away from RSD because not many people know what it is...even doctors! So, I believe they would be most likely to put heart attack, stroke, etc... just my two cents. Also, from an ins point of view if the ME put RSD and it came from an injury then workers comp would be sued by so many people they would be out of business. I believe when it is your time to go it will be that time so we need to make the best of our lives and do the best we can each day. Yes there are days I hate my life and yes the suicide rate for people with rsd is 76% in the first five years (very sad), but we just have to do the best each day...it is all we can control in life. You are an inspiration to us all. Keep the faith going. Take care,
kathy

I met an Angel shhh was all I heard
And her wings were so much more beautiful than any bird
They shone the light of Heaven I dont know why
The Angel gently touched my face and said please dont cry
I told her how war and famine were more than the world could take
'Then I got the strangest feeling for this was what she spake
You are a child of God ,
Come play in his field
God wants you to have so much joy ,your sorrow will be healed
You can stay in Heaven until you want to leave
You can stay by Gods side with the words that you weave
And perhaps become an Angel who will nevevr have to leave
The Angel said " I have come to know you on this day "
To know the Child inside wont be hurt when you learn the Lord's Way
To say yes she is waiting for you with your whole family
Just try to remember the time on Earth is very short even if you do remain the last
Then she kissed my cheek
I felt my sadness leave and felt love again ,I could not even speak
Then I heard the Angel say goodbye son of Eve
As long as you can keep your faith ,she will never really leave

This is an excellent post and makes us all wonder...I have been having a huge problem with high blood pressure and it has made me think about everything I eat, because I have to certainly have to watch my salt intake. I have recently learned that high BP goes hand in hand with RSD and my doctor informed me that if I didn't get my yo yoing BP under control I would certainly have a stroke...he stated that he attributes my BP issues on RSD, so in some ways I feel that RSD can cause someone to die.

is if RSD takes me..I want you all to go with me as I would be lost without you all up there sailing amongst the clouds...I too, believe RSD has an indirect affect on causing us to leave here prematurely... show me the light, baby!!

Much love, Kathy..KS!!

One of those Fox stories mentioned suicides. I know between BT and NT we have seen 4 or 5 to die and all have been from suicide..
I know a lot of people around my area with RSDS and we are all still kicking. It may cause strain on our heart from the pain or maybe bring on other illnesses that can cause death. Haven't heard of a death by RSD only.

Ada

I believe from the stand point of our immune system..Running on 'flight" high day in and day out..This in time must take a toll on us...Opens us up to developing other conditions/illnesses easier than your average bear and that is ultiametly is a disadvantage to us...Our bodies are just not wired to withstand the constant pain and agony RSD presents us with..it takes a toll over time and that indirectly can be a bad thing..But by then I will be buying my ticket for a direct flight up anyway!! Tired of the hurt... heart and body!

Love, Kathy

You are always so positive Kathy, you are light! My hero
God bless you and everyone here
Lori

Slap me silly...my friend..Thank you for saying that!!! I was just scrolling thru this post and read your sweet note..I do want to take everyone here with me... Who else would understand me up there and heck..besides..I am afraid of heights!!

Lori..I want to share with you in that these last few weeks have been a trial and sad for me as my beautiful Mom of 80 yrs. of age is not well.. I had to place her with hospice care..she is suffering with many strokes coming fast and furious and demensha.... So I thank you for your kind words..They really were timely and sent my spirits soaring!!

Hugz my friend...Kathy

Rsd might not directly cause death but what happens if you get rsd of the mind? My body now has a whole set of positions in the neck which alter the function of everything. Doctors may try brain stuff but I've got a bad outlook as I lost normal function of my legs this week and it already has every other bit.My mind has produced positions and as you try to sleep relax etc it throws you into the poison.I am desperate now as my bp is constantly over 190 and drugs accelerate it further.Does anyone think there's help possible in US.Remember I did have 7 years of recovery from exercise but the disease has changed character and is faster and more violent than before.

Do not loose hope my friend for in the midst of our suffering is our greatest of friends. Just remember you will never be alone you will always have someone by your side.
Can you tell me what the dr.'s are doing for you? I will pray for your relief.