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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Guest
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Hi Folks,
I have come up positive for a Proteus Mirabilis infection by biospy. This can cause lesions in the white and grey matter of the brain. I am wondering if this is the root of my RSD??? Hugs, Roz |
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#2 | ||
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Yappiest Elder Member
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can you tell us more on what that is roz?
welcome back. it's been along time. ![]()
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"Thanks for this!" says: | DianaA (12-15-2008) |
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#3 | ||
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Guest
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Dear Curious,
Let me start my saying 8 years ago I was DX with RSD first by an ortho MD with at least 30 neuro's following the DX. I was given no hope at all, total disabled that's what they told me, and I was also told by the MD's to accept it. I had a fall in the kitchen that evening which caused this total RSD hell. My pain never stopped and was worse pain than childbirth. Can you imagine just having a fall and ending up with RSD?? Well, I always asked why. The day before RSD hit me I had run 3 miles, I have always liked anything atheletic. Again I was told please my the MD's all we can do is treat your SX except the DX, I told them I needed my life back. You have no life with RSD. I needed to know why I had it. I would also like to add I am not a A type personality at all. My husband laughed when he heard that one, because he is. I 100% know I have a weak immune system, I was born that way. After several Neuro. medical documents. I believed their was a root to my problem. I mentioned to several MD's if it was possiable for something to invaded my immune system and nerve system, several said it was possiable. cont.. |
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"Thanks for this!" says: | Curious (12-15-2008) |
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#4 | ||
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Guest
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well anyway, if this bloat would take patients I would see him as soon as possiable. I heard his wife who is a scientists, had a rough leg condition that was cured.
http://www.immed.org/illness/Neurode...0Diseases.html http://www.immed.org/ I have gone from off the chart pain. Really all I have is mild burning pain at the levels 1-2 today, on the top of my head. I am not what I was, I believe their has been cell damage to my brain. But maybe I have learned more compassion along the way. I used to be really really bright, but if I can help anyone of you I will. I beg of you never ever stop searching to get get ride of the pain. God Bless You All , Roz |
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"Thanks for this!" says: |
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#5 | |||
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Elder
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Hi Roz!!
Welcome Back!!! I've missed seeing you around here!!! ![]() Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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#6 | |||
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Member
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Here are a couple of sites that talk about that kind of infection.
http://www.phageinternational.com/pathogens/proteus.htm http://emedicine.medscape.com/article/226434-overview Looks like the short line is it's an intestinal bacteria and can cause UTI's and other things in that vein. It's commonly found in long-term care facilities and hospitals and from patients with underlying diseases or compromised immune systems. Considered a community acquired infection.
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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"Thanks for this!" says: | DianaA (12-15-2008) |
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#7 | |||
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Senior Member
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Hi Roz!
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. Gone Squatchin |
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