Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-19-2006, 12:59 PM #1
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Claudia....
Thank you for keeping us up on what is going on. I am so very sad to hear this news.....and I am hoping that this weekend has brought about some kind of change for the better for Bill. I am also hoping that Ada has left his bedside, at least to get something to eat, and to get some sleep.....

My heart is breaking for her, for him...for them....for their whole family. I am holding them all in my heart, and sending them ALL my good thoughts and prayers. I wish that there was more that I could do. Times like this make me feel so useless, when someone that I care about needs help. But, I do know that prayers and positive thoughts have great power, so I am sending as many as I can towards Colorado, to Ada and Bill.

Thank you again for letting us know what you found out. And, for letting the family know that we care, too. ((hugs)) to you, Sweetie, as I know things aren't going so easy for you right now, either. Not anything like what Ada is dealing with, but by no means easy. We really have to "talk". Past time for that, don't you think?

Love and ((Hugs))
Jose
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Old 11-20-2006, 11:17 AM #2
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Claudia thanks for the update. Have you heard anything over the weekedn? My heart goes out to Ada and her family. If something happens to Bill, Ada will be devastated, because they do have such a great relationship. Please keep us posted when you hear from them.

Love ya,
Janet
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Old 11-20-2006, 11:43 AM #3
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Of course if there is anything I can do to help Claudia, please do not hesitate to let me know. I may be on Cape Cod but I will try if I am able. I am so fond of Ada I hate this so bad. Why does bad stuff happen to such grood people? Can anyone explain that? It's not like we don't have enough to deal with on a daily basis. If you see her please give her a huge hug for me?

Love Mark xoxo
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Old 11-20-2006, 02:18 PM #4
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Hi,
Ada I just want you to know, you and Bill are in my heart and prayers. I am deeply sorry to hear about this. You are such a beautiful person. Big Huge Hugs, Roz
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Old 11-21-2006, 11:55 AM #5
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Claudia,

I sure pray that this set back is just temporary and that Bill is resting comfortably with vent and that his mind and body is regaining the strength that he needs to heal. I'm praying for him.

Both my Father (for myasthenia gravis) and my dear neice (for a serious car accident) were placed on vents. It's a very rough road, especially for the family to watch their love ones. It truly gives the body a chance to rest, repair. And during this event of being placed on a vent the body doesn't have to not worry about breathing on it's own so other vital organs can heal. Prayers and positive thinking...work miracles.

Please let Ada know that I'm thinking of her, and her family. That my prayers are being sent her way. That Bill doctors will come in each day with good news and each day will bring baby steps forward towards recovery for him.

With aloha, Dana
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Old 11-21-2006, 01:20 PM #6
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Default as of today......

i have not heard from ada......when i spoke with her last, she told me that the doctors wanted them to take bill off of the ventilator on monday.....i tried calling her last night, but the phone was always busy........so maybe no news is good news? hopefully things may have changed, and she would not have to make a decision........

mark, ada lives in colorado, and i am in michigan...unfortunately my arms don't reach, but we could all pull together and form a HUGE VIRTUAL HUG for her..................she is indeed a good lady, and a dear friend...................as soon as i hear anything, i will let you all know...................
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Old 11-21-2006, 03:18 PM #7
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Claudia, please do, when you speak with her, let her know we are ALL pullng for Bill. They are a very important part of our community here, and they are surely in all of our thoghts and prayers. I, too, am in Michigan, so we can start with our arms and reach across the country to form our big hug.;...I'm sure they'll be able to feel it.

Ada, I pray all is well with you and Bill...and that we hear good news next time Claudia posts. Hugs to you both
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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