Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-03-2009, 10:50 AM #11
liz0688 liz0688 is offline
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Join Date: Nov 2008
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liz0688 liz0688 is offline
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Join Date: Nov 2008
Posts: 6
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Quote:
Originally Posted by MominPainRSD View Post
Yeah.......HOLY COW.......SOMETHING they put in my IV (apparently AFTER they put the "chilling out" meds in) caused my hand to BURN like a MF (I believe I woke up and used that term as it went in). THAT was honestly the worst part of it. It woke me up out of my nice mellow state and felt like they had just injected hot burning acid into my hand. Anyone else had that??? Hubby said I looked like I had a severe sunburn when I woke up......ALL over my entire chest and tummy. The Benadryl worked and I didn't have to take more.

So......the morning after my block.....I am doing ok. The swelling has subsided, I won't know until I hop in the shower as to whether the color changes are still there (I'm assuming they are.....ankle turned BLUE last night). The allodynia seems a bit better.....it's mostly on my toes now (MAN, I wish those pesky ants would quit gnawing away at them). I can, at least, touch my foot and it just feels numb, not like glass is being rubbed into it (although that symptom has been coming and going over the past week anyway). I have a hair appointment this morning......will have to do a lot of sitting. THAT should be the test.....letting my foot dangle. If it swells (like it usually does when I'm upright), I will assume there has not been a lot of improvement. We shall see....

I tried to switch my mood to "optimistic". I thought there was one that said that. Apparently not. I chose "fine" since I was "buzzed" last night (one glass of lovely Cabernet) and "hungover" is not applicable. They SHOULD have an "optimistic" mood. We deserve at least to feel that, right???

You're all correct......at this point, I should be looking for ANY improvement for ANY of the symptoms....not expecting a sudden "cure". I should know well enough to just lower my standards and then I'm not as disappointed when good things don't happen!!

I have a friend who always quoted two things (I used to think of her as "cynical".....by golly, there's a button for that one here!!......I've found a lot of truth in these statements in the past decade). One is:

"The best way to avoid death is to avoid life".
The other (with my personal twist on it):
"Trust no one".

I chuckle as I write these. I try not to take things too seriously. While there may be truth in both statements, it is not a great way to live, and I have found myself more and more alone in life adhering to them. I choose to be "fine" today since optimism is not available at the moment!!
I'm off to get my hair done now so I can look PRETTY lying in the bed for the rest of the day!!

Best wishes to all for a pain-managed day!!!
I had the epidural block a year ago, the five day one, and I had the same reaction as you!! I had exsteme burning as if he was injecting acid.

The block was supose to go into my RIGHT foot, ok, I could feel the medication going into my back and down into my right leg but it felt just like acid, and did it burn.!! I had to have two vicodans right away and then a shot of morphine and it didnt even touch the pain I was feeling. By the time I left that day, my entire left leg was numb! This was suppose to be a five day ephy two! By the time I got home that night, my left leg, my whole waist area, my right arm and the right side of my face where numb! The next morning I went back to the doctor because he wanted to try more of the injection being it was to be a five day ordeal. As soon as he started the medicine again my right leg started burning, he imediatley stopped and said he had never seen this kind of reaction. My left leg took a year or more to get the feeling back in it and now I have rsd there too which my doctor will not acknowledge to this day. Now I have rsd on the entire right side of my body and still in my left foot, the doctor says its impossible that he didnt do it, and rsd dosent spread, lol

sorry so long guys, feel better ok,
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