Interesting that you suggest this. When I first developed RSD (1986) was the time that Lyme was just being 'widely discovered.' I had many doctors suggest I had Lyme because they didn't know what else it could be. At that time, the best test for Lyme was the symptoms. I had very few of the symptoms - and none of the 'classic' markers - but it was convenient for the doctors.

This all points to: get a second opinion, third opinion, even fourth opinion or more if it doesn't add up right.

Thank you for the reminder, Roz.

Mike

Under OUR SKIN

I watched this a while back. I could physical relate to them in the film. PRESS Trailor


http://www.snagfilms.com/films/watch/under_our_skin/

Read this Article as well, by someone named GERI.

Below is just part of the article.

It took a year and a half and over 30 doctors in many states before I received a diagnosis of Lyme disease and began treatment. Before my diagnosis of Lyme disease, I was also diagnosed with Reflex Sympathetic Dystrophy (RSD), which is a pain syndrome affecting the sympathetic nervous system. I decided to attend a RSD Pain Rehabilitation Program for six weeks at the NIH Outpatient Centers at Bethesda, Maryland.




http://www.geocities.com/HotSprings/...ersonal21.html

I'm off to the doctors, so just a quick note. There is also a video called "Under my Skin". I haven't seen this will try to post a link if there is one, later.
Thanks for the info! Di

Dear Jeanne,

Your beautiful daughter is blessed to have a caring mother like you. My youngest was 8 he is now 16, he NEVER had much of a mum for 8 years. He loves me and is just a good teenager, very caring towards me.

I was dragged to at least 100 MD's by my husband, around 30 neuros.

Well one MD said I think you have Lyme Disease ( I am sure this is NOT in my medical chart), he explained you can get it from any bug bit. He didn't treat it anyway.

At the time I thought how silly, I didn't believe it. I could't believe how any little bug could have caused me to be in such rough shape.

Much Love, Roz

Dear Mike,

You mention it was convenient for the DOCS.., Lyme Disease is VERY difficult to treat. Were you treated at all for it?Hugs, Roz

Hi Diana,

I read a couple articles about LAB 257, very shocking to say the least.

I'm not sure if it true or not but heard Borrelia ( LYME)dates back to Russia 200 hundred years ago.

Much Love, Roz

No, I was not treated. In 1986, there was no good treatment, only relief (?) from symptoms. They were not even sure what was causing the spread at that time.

Or, a doc would declare "LYME" and then go on to say they did not know how to deal with it, but they did not know to whom they should refer. That's what made it a relatively easy cop-out. (I even had one neurologist tell me I had malaria, and wanted to know if I had been to Africa and bitten by a tse-tse fly!)

That's all I meant by convenient - they would just pass me off to someone else without treatment.

Mike

Dear Mike,

You could have this co-infection that goes with lyme as well.

http://emedicine.medscape.com/article/212605-overview
The clinical signs and symptoms of babesiosis are related to the parasitism of RBCs by Babesia. Fever, hemolytic anemia, and hemoglobinuria may result from Babesia infection. As with malaria, RBC fragments may cause capillary blockage and/or microvascular stasis, explaining liver, splenic, renal, and CNS involvement. As with malaria, cells of the reticuloendothelial system (RES) in the spleen remove damaged RBC fragments from the circulation. RBC destruction results in hemolytic anemia.



YOU NEED A LYME LITERATE MD., I have one but I am in CA.

No infectious disease or Neuro. will treat LYME. This is VERY DIFFICULT to treat. I am sure they have a LYME LITERATE MD where you are.


Be good to you, Hugs, Roz

Hi Roz,

I can't believe this- How are they going to treat you? I don't know how to get tested for Lyme. They did the standard blood test when I was first diagnosed. But now I am wondering....I never did have an accident or injury to cause my RSD and no txs have worked for me..

Good luck

Debbie