Thank you so much for your kind words - I really appreciate them! I'm so sorry to hear that your daughter has RSD at such a young age also - if you would ever like anyone to talk to, please know that I am here for you because I do understand how scary it can be at times dealing with such an awful condition!!

I have attended an Intense Physical Therapy Program at Great Ormond Street Childrens Hospital here in the UK. The first time it really helped me - I was in a wheelchair and they got me walking short-distances within 3 weeks but the program didn't help with my pain at all. The PT's later asked for me to attend the Program again as they wanted to try and ease the pain and get rid of the Dystonia that I have and it didn't help me at all. I was due to return back to the program now to have my leg put in a full leg-cast but we chose not to go as the thought of it REALLY scared me and I have heard so many horror-stories about casting an RSD limb!!

I am SO glad that the program helped your daughter - that is such great news! They only have one program here in the UK that specialises in Intense Physical Therapy for RSD so it can take quite a long time to get onto the program. I really wish they would have more programs like this here in the UK as we had to travel 3 and a half hours to get onto the program and it meant we had to live away from home for 3 weeks which was pretty stressful lol.

Take care and send my love to your daughter and if she ever wants to talk to anyone, I am here!