Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 11-27-2006, 01:51 PM #1
jcherry's Avatar
jcherry jcherry is offline
Member
 
Join Date: Nov 2006
Location: Arkansas
Posts: 145
15 yr Member
jcherry jcherry is offline
Member
jcherry's Avatar
 
Join Date: Nov 2006
Location: Arkansas
Posts: 145
15 yr Member
Default

Hi Mark, As always Thank You so much for sharing this with us. Actually Good Morning America showed something similar to this last year. Mt Dr immediately told me about this procedure and he had also heard about this treatment at a seminar he attended. I do think for those that it works on, and the ones that can afford it, it's great, but of course like everything else, it doesn't help everyone. Like this article stated only 15 of the 30 patients that had undergone the coma induced treatment was relly relieved of their pain. Of course there is always hope that eventualy they will come up with something to benefit us all.

Thank You so much for all of your helpful topics..

Love ya,
Janet
jcherry is offline   Reply With QuoteReply With Quote
Old 11-27-2006, 09:27 PM #2
Abbie's Avatar
Abbie Abbie is offline
Elder
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Default

Just some info on what I've been able to find out about long term or longer term success with Ketamine.

My doctor has been looking into this but is extremely concerned about the fact that the doctors he has talked to tell him him that the long term success they are finding is among the age groups younger than 25 who are still (luckily for them) in the acute stages of RSD. Now I'm not saying that those of us older won't have or don't have success... I'm just relaying what my doctor has found out. I don't understand why these results aren't readily available or why we mainly only hear of the successes and not the failure or lack of success of this treatment.

My thought along with my doctor's is... this is a lot of money to spend for what he calls a less than 50-50 shot at it working for someone who's over 25... I know there are no guarantee's in medicine but ideally, I'd like a little more research and a little more success with this treatment before I can think of shelling out the 27 to 50 thousand plus on this. (By no means to I have this kind of money.... but if this were my last hope and there were greater numbers of success... I'd beg and borrow to have this done....those are the $$ amounts my doctor has been quoted by the doctors here and in Germany.)

I have to add that I am extremely happy that this treatment does have success for some!!! I wouldn't wish this monster on my worst enemy!!!

Last edited by Abbie; 11-27-2006 at 09:28 PM. Reason: poor grammer...fixed somewhat.
Abbie is offline   Reply With QuoteReply With Quote
Old 11-28-2006, 10:31 AM #3
jcherry's Avatar
jcherry jcherry is offline
Member
 
Join Date: Nov 2006
Location: Arkansas
Posts: 145
15 yr Member
jcherry jcherry is offline
Member
jcherry's Avatar
 
Join Date: Nov 2006
Location: Arkansas
Posts: 145
15 yr Member
Default

Abasaki, thank you for posting this.. I didn't know what the price amount was, but am glad to see that your Dr told you an approximate.. There is no way I could ever afford that. and even if I did have insurance I guarantee they wouldn't cover it. I do hope and pray every day that they come up with something to help all of us, and like you, I would not wish this on my worst enemy either. I have to say there are a few people who don't think there is such a thing as RSD that I would like to experience it for at least 3 hours.. I know that sounds cruel, but you know that unless you have been cursed with this disease you cannot fathom the pain.

I am so glad to be here with all of you great folks.. You really do make my days brighter.

Love to all,
Janet
jcherry is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Banding videos on YouTube reverett123 Parkinson's Disease 47 02-08-2009 08:52 PM
Video on YouTube msdrea83 Reflex Sympathetic Dystrophy (RSD and CRPS) 2 11-23-2006 12:21 PM
Parkinson's Disease is Real - youtube.com GregW1 Parkinson's Disease 5 10-29-2006 03:48 PM
new video jes123 Parkinson's Disease 1 10-28-2006 10:03 PM
GDNF Results Video - From YouTube GregW1 Parkinson's Disease 1 09-20-2006 12:01 PM


All times are GMT -5. The time now is 06:06 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.