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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-08-2009, 01:18 AM | #21 | ||
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I don't have a lot to suggest as because I'm not in the US, I don't know your prices etc. For me at the moment, I take endones for breakthrough pain.
The main meds we all do the trial and error games with are the anticonvulsants (neurotin, topaman, lyrica etc), antidepressants and opioid based meds, such as oxycontin, ms contin etc. Then there are extras like muscle relaxants, tramadol, infusions etc. Previously I had good pain relief from anticonvulsants but not anymore, the opioid ones are the only ones that give me pain relief but now my body isn't liking them anymore Sorry I can't add much to the discussion, but I hope it all settles down for you soon.
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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09-08-2009, 07:43 AM | #22 | |||
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Magnate
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I'm on Methadone which is 40 dollars for 90 of them.
As far as meds, if you don't have insurance, you can have your Dr. to prescribe a med and you can go to the Pharmacist and get the phone no. of the company that makes it and call them and they will send you a form, one page, for your Dr. to fill out and they will send you your meds free. They can fax the form to your Dr. Sorry to hear what you have been through. It's too bad that WC is such a joke for taking care of people. By the way, I'm a fellow Kentuckian but live in Co. now. Still have a large family near Lexington. I'm glad you found the forum, you will learn a lot here to help you. Ada |
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09-08-2009, 08:04 PM | #23 | |||
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Junior Member
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plllls don't think i'm stupid.... but can i ask a question? what is "break-through" pain?? i'm just 16 mos. out w/RSD & take Neurontin 1800mg/day. refuse 2 take narcotics OR shots! (i'm on W.C.) just now talking 2 a great attorney - in case i need him! thks!
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May you always be overwhelmed by the Grace of God rather than by the cares of life! . . |
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09-09-2009, 10:54 AM | #24 | |||
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I am on Neurontin & Buprenorphine pain patches for my RSD. With those two my pain is considered to be "under control". This means that the pain medication is given in a certain amount to attain a certain level of comfort, as they cannot take the pain away fully, it *is* nerve pain. But even then, I have about 1 to 4 moments a day (sometimes more) when the pain increases despite the pain medication regimen. When that happens, the increased pain is called "breakthrough pain", it's the pain enhancing a number of times a day, a night even though your pain is "controlled", as in: treated. Especially for moments like these, I have oral Buprenorphine (tiny tablets). I put one or two (depending how intense the pain has gotten again) under my tongue and it eases the pain a little more.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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