Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-08-2009, 01:18 AM #21
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I don't have a lot to suggest as because I'm not in the US, I don't know your prices etc. For me at the moment, I take endones for breakthrough pain.

The main meds we all do the trial and error games with are the anticonvulsants (neurotin, topaman, lyrica etc), antidepressants and opioid based meds, such as oxycontin, ms contin etc. Then there are extras like muscle relaxants, tramadol, infusions etc. Previously I had good pain relief from anticonvulsants but not anymore, the opioid ones are the only ones that give me pain relief but now my body isn't liking them anymore

Sorry I can't add much to the discussion, but I hope it all settles down for you soon.
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Old 09-08-2009, 07:43 AM #22
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Default Hi,

I'm on Methadone which is 40 dollars for 90 of them.

As far as meds, if you don't have insurance, you can have your Dr. to prescribe a med and you can go to the Pharmacist and get the phone no. of the company that makes it and call them and they will send you a form, one page, for your Dr. to fill out and they will send you your meds free. They can fax the form to your Dr.

Sorry to hear what you have been through. It's too bad that WC is such a joke for taking care of people.

By the way, I'm a fellow Kentuckian but live in Co. now. Still have a large family near Lexington.

I'm glad you found the forum, you will learn a lot here to help you.

Ada
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Old 09-08-2009, 08:04 PM #23
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plllls don't think i'm stupid.... but can i ask a question? what is "break-through" pain?? i'm just 16 mos. out w/RSD & take Neurontin 1800mg/day. refuse 2 take narcotics OR shots! (i'm on W.C.) just now talking 2 a great attorney - in case i need him! thks!
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Old 09-09-2009, 10:54 AM #24
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Quote:
Originally Posted by nancyinLA View Post
plllls don't think i'm stupid.... but can i ask a question? what is "break-through" pain?? i'm just 16 mos. out w/RSD & take Neurontin 1800mg/day. refuse 2 take narcotics OR shots! (i'm on W.C.) just now talking 2 a great attorney - in case i need him! thks!
I am on Neurontin & Buprenorphine pain patches for my RSD. With those two my pain is considered to be "under control". This means that the pain medication is given in a certain amount to attain a certain level of comfort, as they cannot take the pain away fully, it *is* nerve pain. But even then, I have about 1 to 4 moments a day (sometimes more) when the pain increases despite the pain medication regimen. When that happens, the increased pain is called "breakthrough pain", it's the pain enhancing a number of times a day, a night even though your pain is "controlled", as in: treated. Especially for moments like these, I have oral Buprenorphine (tiny tablets). I put one or two (depending how intense the pain has gotten again) under my tongue and it eases the pain a little more.
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Work related (car) accident September 21, 1995, consequences:
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- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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