Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-23-2009, 11:41 AM #11
Mslday's Avatar
Mslday Mslday is offline
Member
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Mslday Mslday is offline
Member
Mslday's Avatar
 
Join Date: Aug 2008
Posts: 409
15 yr Member
Default

"For a GREAT article on the subject, written for the general reader, see, "The Painful Truth: The Iraq war is a new kind of hell, with more survivors - but more maimed, shattered limbs - than ever, a revolution in battlefield medicine is helping them conquer the pain," by Steve Silberman, Wired, Issue 13.02 - February 2005 http://www.wired.com/wired/archive/1...ain&topic_set= The story tells the tale about how one anesthesiologist from Walter Reed revolutionized the treatment of horrific battlefield injuries, all by pumping local anesthetics into the site of the wound. "

Hi Mike,

Great article. This is the same technique I was given following my surgery in Germany this past summer. I had the pump going continuously for 1 week. German doctors consider this the "gold standard" for treating newly diagnosed RSD cases and have been using it with great success for years (they call it a peridural anesthesia for the lower limbs). For the upper limbs my doctor said that they can access the nerves through a spot somewhere in the neck area. I'm happy to see that it is finally making its way to North American hospitals because it will make a huge difference.

MsL
Mslday is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
llrn7470 (01-24-2009)

advertisement
Old 01-23-2009, 09:48 PM #12
kejbrew kejbrew is offline
Member
 
Join Date: Feb 2007
Posts: 129
15 yr Member
kejbrew kejbrew is offline
Member
 
Join Date: Feb 2007
Posts: 129
15 yr Member
Default

Excellent information Mike!

I stand corrected...

EJ
kejbrew is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
llrn7470 (01-24-2009)
Old 07-17-2009, 11:37 PM #13
overcomer overcomer is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
10 yr Member
overcomer overcomer is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
10 yr Member
Default

hi, I to woke from surgery w/rsd rt hand/arm, now in lt arm - I had 2nd opinion from Specialist who adm surgeon pull my shoulder into incorrect position injuring brachial nerve causing this condition - that has been 14 mos ago and now I am on disability - I have been researching as well to find if there are any legal grounds -
overcomer is offline   Reply With QuoteReply With Quote
Old 07-18-2009, 02:27 AM #14
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
hope4thebest hope4thebest is offline
Member
 
Join Date: Jan 2009
Posts: 305
15 yr Member
Default

My ortho surgeon said my RSD developed because i didn't take any pain meds after my ankle surgery..which consisted of reattaching two major ligaments and removing two hunks of bone that the ligaments had pulled away from the fibula.

Granted, it was hell to not have anything to help with pain,(my choice) but I thought I could bear it and I did..It was horrible. (pain meds make me sick)....(but I'm taking Neurontin now....)

I wonder why he didn't tell me that if I didn't take pain meds, I would be susceptible to RSD....he never mentioned RSD..like many of us I had never heard of it until the monster disease started chomping on my foot....( besides the pain, I now get burn in both feet/legs..) IF he had told me I could develop RSD if I don't take pain meds, I would have taken them!!!!

My question is, why did folks who did take pain meds after surgery develop RSD anyway, despite the help of the pain meds!! Is the doc's theory wrong?

Pain, pain go away........

hope4thebest
hope4thebest is offline   Reply With QuoteReply With Quote
Old 07-18-2009, 02:32 AM #15
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

Quote:
Originally Posted by overcomer View Post
hi, I to woke from surgery w/rsd rt hand/arm, now in lt arm - I had 2nd opinion from Specialist who adm surgeon pull my shoulder into incorrect position injuring brachial nerve causing this condition - that has been 14 mos ago and now I am on disability - I have been researching as well to find if there are any legal grounds -

Some of the arm/shoulder surgery positioning & injury can be a cause of thoracic outlet syndrome {TOS}also.
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 07-18-2009, 02:41 AM #16
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,687
15 yr Member
Default

Quote:
Originally Posted by hope4thebest View Post
My ortho surgeon said my RSD developed because i didn't take any pain meds after my ankle surgery..which consisted of reattaching two major ligaments and removing two hunks of bone that the ligaments had pulled away from the fibula.

Granted, it was hell to not have anything to help with pain,(my choice) but I thought I could bear it and I did..It was horrible. (pain meds make me sick)....(but I'm taking Neurontin now....)

I wonder why he didn't tell me that if I didn't take pain meds, I would be susceptible to RSD....he never mentioned RSD..like many of us I had never heard of it until the monster disease started chomping on my foot....( besides the pain, I now get burn in both feet/legs..) IF he had told me I could develop RSD if I don't take pain meds, I would have taken them!!!!

My question is, why did folks who did take pain meds after surgery develop RSD anyway, despite the help of the pain meds!! Is the doc's theory wrong?

Pain, pain go away........

hope4thebest
I don't know that his statement is correct. I haven't heard that before.

Almost makes me wonder if he is trying to put some of the blame onto you, instead of just saying " I'm very sorry but you have RSD now as an after effect of the surgery."

You might have just been one that would had gotten RSD anyway from any surgery and whether or not you took the pain meds or not..
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 07-18-2009, 04:57 AM #17
lexiemae1 lexiemae1 is offline
Member
 
Join Date: Sep 2008
Posts: 144
15 yr Member
lexiemae1 lexiemae1 is offline
Member
 
Join Date: Sep 2008
Posts: 144
15 yr Member
Default stupid nurse

Quote:
Originally Posted by llrn7470 View Post
I wanted to throw this out to the experts and see if it's been heard of.
My PMR states that I got CRPS due to an anesthesia problem. Follow along-it's a little convoluted. I went in for a knee arthroscopy and patellar realignment. Got the IV in preop hold and anesthesia did what appears to me to be either a femoral block or an anterior sciatic block. Anyway, after a bit, I was sitting there in tears because only the lateral half of my leg was numb. She called the anesthesiologist over and she said she would "give me something to fix it." Then, the gave me a wallop of Versed, cause the lights went out. However, my PMR states that while they gave me enough anesthesia, they failed to give me adequate analgesia. Thus, I was asleep for the surgery but my nervous system felt the whole thing due to no pain control. Just taking a poll-
-anyone ever heard of this happening?
-anyone have this happen to them?
-does this sound rational?

Lori Lee
Lori A stupid nurse told me over the phone the reason I have RSD is from having 9 different types of operations?? Imagine that?? The only operations I have ever had was necessary ones for endo gall bladder knee surgery and 2 vocal cord surgeries??
lexiemae1 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hey has anyone ever heard of "stiff man's disease"? Jim091866 Parkinson's Disease 10 09-29-2019 11:55 AM
"The Bipolar Handbook" & "Horror Movie Hallucinations" Nathan1097 Bipolar Disorder 17 12-20-2007 06:41 PM
saving the "when did you get your initial rsd/crps dx" thread JOAN_M Reflex Sympathetic Dystrophy (RSD and CRPS) 2 09-10-2007 08:59 AM
Nitration in neurodegeneration: deciphering the "Hows" "nYs". olsen Parkinson's Disease 0 09-05-2007 03:51 PM
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" lou_lou Parkinson's Disease 0 11-02-2006 05:20 PM


All times are GMT -5. The time now is 01:01 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.