Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-22-2009, 08:56 PM #4
jenno jenno is offline
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Join Date: Mar 2008
Posts: 124
15 yr Member
jenno jenno is offline
Member
 
Join Date: Mar 2008
Posts: 124
15 yr Member
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Hi Roz,

Do you think that you developed RSD because of your Lymes, or do you think that the RSD was totally misdiagnosed?

Yesterday I talked with a mom in our area who has a 27-year-old son who has had Lymes for 10 years. Back when it all started they were told that he was mentally ill. She said that doctors put him on every "anti" med possible, anti convulsion, anti depressant, anti psychotic. It was not until he ended up on life support that they realized that he had Lymes the entire time. She called me because she heard that we use a mild hyperbaric chamber for Sarah's RSD, and they are looking to buy one because hbot has helped her son as well. The horror stories of Lymes and RSD patients have many similarities ... leaving me with lots and lots of questions. I sure don't want to learn 10 years from now that we too were "barking up the wrong tree".

Keep on pushing us to demand more.

Thanks,
Jeanne
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