Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-27-2009, 08:06 PM #4
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GalenaFaolan GalenaFaolan is offline
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GalenaFaolan GalenaFaolan is offline
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Join Date: Dec 2006
Location: Florida
Posts: 445
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Quote:
1. Does being emotionally upset of depressed worsen RSD pain or cause it to spread? ie-should I tell my sister to get off my #*%&# back because she's making my leg hurt?
Stress and strong emotions will definitely make the pain go up, but not spread. If someone is making your life more stressful with a bad attitude or anything else then you most certainly need to tell them to stop it. I know it might sound a bit harsh to some but I cut the people in my life, even my family, out of it that didn't believe me and were keeping me upset with their comments. Life is stressful, so it's not like we can totally avoid it,but we can lessen it by our own choices, especially when it comes to people.

Quote:
2. Is it possible the area efected with RSD to "move?" The top of my knee had severe symptoms, but now feels normal (on meds) but my foot is now displaying RSD symptoms. Does the top of my knee only fell better because I am on meds? Leading to...
Not sure what you're asking here. We know rsd often spreads, so if you're getting rsd symptoms where there were none before then it sounds as if it might be spreading. The meds definitely help keep pain down most of the time. I'm sure if you were to stop the meds the top of your knee would feel so great anymore.

Quote:
3. Do all of the meds that I am on (MSContin, Lyrica, Lexapro, Klonopin) simply mask the RSD and as soon as I stop taking them, I am back to full throttle pain?
Short and simple answer,is a resounding YES. Which is what I just said above. LOLOL The meds aren't masking the rsd per say, just toning down the symptoms associated with it.

Quote:
4. Is it a big deal that I smoke-purely from an RSD persepctive, of course I know I shouldn't smoke-relative to my disease? Could it make it worse?

Quote:
5. Is it normal, say in the first year, to have episodes of being very emotionally labile? Is that RSD in the limbic systen or emotional from watching your old life dissapate into the air? One minute I am crying and the next I am laying in bed like a bump wishing I couldn't hear anyting (yes, I am aware that I am depressed-working on it-but is part of it the limbic system?)
Being depressed is from losing the life you knew, being the person you were and dealing with the pain and financial problems that come with all of it. It's hard not to be emotional. I wouldn't say that being all over the board emotionally can be blamed specifically on a system in the body. It's just a normal part of working toward acceptance and dealing with your "new" life.

Hope this helps.

Hugs,

Karen
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Living, loving and laughing with RSD for 14 years and counting.
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