Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-27-2009, 10:49 PM #1
Iffynah Iffynah is offline
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Join Date: May 2008
Location: Nebraska
Posts: 75
15 yr Member
Iffynah Iffynah is offline
Junior Member
 
Join Date: May 2008
Location: Nebraska
Posts: 75
15 yr Member
Default Been a while

Its been a while but giving an update. The doctor finally scheduled an MRI, he says that it came up clear. I'm not sure about that. I have muscle detioration in spots on my arm. The doctor is releasing me to full medical recovery this coming up visit. I'm not fully healed, no where close. Although my discoloration is down to a minimum, thanks to the OTs I was seeing. They tell me there is no doubt in their minds that I have RSD, the only difference I have compared to most is I still have decent motion. This doctor is telling me my pain is not related to my injury. He doesn't even look at the area that was injured. He looks at the opposite side. I told this doctor too that I had a reaction to the shots he gave me but said that is not related to the shots. He needs to go back to medical school. My reactions were those of an anaphalactic shock. He also said it was just a shot of steriods, I told him I have had the shots before and same reaction. But I didn't seek medical attention because I didn't feel that it was severe enuf to do so. Apparently I should have. I called the attorny who I had started everything with, they are gonna reopen my case and see what can be done before this doctor fully releases me. But the attorney's secretary was kinda snooty to me thinking all I want is money. I don't I just want to be normal/better again. All the stress I'm under is not helping my pain any. My hubby lost his job. We've both been looking but there is nothing. I have still applied to places but I have to be able to lift things which I can barely hold my daughter's sippy cup. I always thought that knowledge was powerful but it is getting me no where and being treated like I looked all this up diagnosed myself and just think that I have all this pain when I don't. I have been having a lot of muscle weakness in my right arm as well. Doesn't matter if I do to much, a little bit, or nothing at all it comes. It has become harder to stretch my fingers all the way out without severe pain. Still having the sensitivity issues. But every OT I have ever seen since this injury has all said that I hit right on the ulnar nerve. Now my nerves are misfiring. But the doctor isn't even listening to them. The doctor also took me out of OT, said he saw no point in me continuing. I so want to cuss him out but don't want to hurt my case. Any suggestions on how to get thru to this doctor? Also have been experiencing some horrible head rushes. They aren't like normal ones where you get up to fast goes black and pull out of it. Standing up laying down or just sitting down I get them. It usually takes no less than 2 mins to pull out of it. The last OTs I had said that this is because of my nerves.
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