Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-28-2009, 08:11 PM #1
kelly6449ed
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kelly6449ed
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Hello MominPainRSD
1st I am sorry about your hubby, I hope he is going to be ok,
now that must be hard, for the both of you, being sick,

Just a bit of info, you might want to look in to,
Here in Mich it is law, that RSD is real, here is the law as it is here in Michigan
please look up your St, and see if there is a law on RSD, if so, everyone in the med field have to learn about it, and more, it is law,,, but its seem its been up to us to make sure they do that also, you can call the RSD foundations in CT, and ask them to send all the info to any hospital or Dr's you might want to see,, they will send it out for you, also do not forget about the
EMT's that is near you,(the EMT near me are learning about it) and so on, but look to see if RSD is Law is your St
if not, you sure can start looking in to that, if you want to, Even my own Lawyer did not know about this Law, when I found it, I sent it on to him
and that help my case,
sorry about getting off track here,

I think its going to be up to all of us RSDers to bring RSD out of the closets
no one is going to do that for us,

again I am so sorry to hear about your hubby, also,

Peace '


https://www.legislature.mi.gov/(S(uw...e=mcl-333-5141
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Old 01-28-2009, 08:25 PM #2
MominPainRSD MominPainRSD is offline
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MominPainRSD MominPainRSD is offline
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That is TOO cool!! I did NOT know that. I will certainly look into it. I may be walking slowly, but by golly, I can still walk. I'll hand deliver all this info about RSD to every hospital, pain clinic, doctor's office, EMT, and PT if I have to.....SERIOUSLY!!

Oh.....you are too sweet to be concerned about hubby. Our circumstances are SO dire aside from health (cancer and RSD are almost just a drop in the bucket!!)......he lost his job a year ago and hasn't been able to find work in this economy, I cannot work due to RSD, we are about to lose everything (well....house and cars.....we get to keep all our stuff.....we just have nowhere to put it all!!), and I can't even afford treatment for my RSD anymore. That is part of why I'm asking these med questions. I can't afford to do trial and error at $20 a RX. I have a TON of Zanaflex and Flexeril......I hate for it to go to waste and have to buy a new med.....but I need ONE that will actually work. Thank you for your well wishes!! We just try to laugh as much as we can. I really appreciate this information. I may have a new mission in my immediate life!!!!
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Old 01-28-2009, 08:39 PM #3
kelly6449ed
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OMG! I am so sorry that just makes me mad,,,,

there is so many story's that need to be told, and when you think you got it bad, just look what someone else is going though
I hope you have some place to go?

Peace
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"Thanks for this!" says:
DianaA (01-29-2009), MominPainRSD (01-28-2009)
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