Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-29-2009, 05:07 PM #1
dealingwithtos dealingwithtos is offline
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Hi Dubious,

Thank you for responding. Yes, I have a phone call into my pain doc. I honestly don't know if there's anything that they can do. I've never had this happen while having RSD.


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Is there any way you can run your whole scenario by your pain-managment doc? Perhaps an emergent block to help prevent pain signals from bombarding your spinal cord might help?
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Old 01-29-2009, 05:41 PM #2
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I agree with Dubious that a block done right away might calm it down and stop it from taking over the foot and leg. In my, non doctor medical opinion, by they symptoms it sounds like the rsd is trying to take hold. Your pm doc definitely needs to know and do something right away.

I had all my spread in a short time and not due to another injury but when it spread, I felt the rsd pain in the spot it went to, got the color changes and skin temp change pretty much at the same time as well. The fact that you're feeling "the burn" there too seems to suggest the rsd is there now. I hope it just calms down and you talk to your doc soon.

Hugs,

Karen
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Old 01-29-2009, 06:59 PM #3
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Just wanted to say I am sorry this happend and I hope you get some direction from your doctor. I hope you feel better
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Old 01-29-2009, 07:20 PM #4
MominPainRSD MominPainRSD is offline
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Please keep us posted on what your Pain Doc says and does. Try to rest and take plenty of pain meds to keep the pain from taking hold (further irritating the sympathetic nervous system) until you can see your doc for a block or other treatment. Some of the pain at night may be due to muscle spasms from "guarding" against the pain. The feet are FULL of nerve endings so that could explain a lot of the extreme pain you're in. Check to see if you can increase your muscle relaxants for a short time until you can get in to the doctor. Try hard (a paradox in terms, I know) not to worry. That will only increase your pain and keep the SNS turned on full blast. It sounds like you're doing everything you can for now.

I'm sure you have already, but make sure your son knows he didn't do anything wrong. I'm sure he feels terrible seeing his Mom in so much pain and thinking it was somehow his fault. Accidents happen (I just washed my son's MP3 player in the laundry yesterday and ruined it.....I had to tell him this in reverse). I know that isn't a fair analogy.......but I have a SERIOUS guilt complex anyway and feel horrible!!!

Please take care and keep us posted on how you're doing!! I am inclined to think positively that it is just a nasty bruise that will resolve once the initial trauma goes down!!
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Old 01-29-2009, 11:41 PM #5
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Quote:
Originally Posted by MominPainRSD View Post
Please keep us posted on what your Pain Doc says and does. Try to rest and take plenty of pain meds to keep the pain from taking hold (further irritating the sympathetic nervous system) until you can see your doc for a block or other treatment. Some of the pain at night may be due to muscle spasms from "guarding" against the pain. The feet are FULL of nerve endings so that could explain a lot of the extreme pain you're in. Check to see if you can increase your muscle relaxants for a short time until you can get in to the doctor. Try hard (a paradox in terms, I know) not to worry. That will only increase your pain and keep the SNS turned on full blast. It sounds like you're doing everything you can for now.

I'm sure you have already, but make sure your son knows he didn't do anything wrong. I'm sure he feels terrible seeing his Mom in so much pain and thinking it was somehow his fault. Accidents happen (I just washed my son's MP3 player in the laundry yesterday and ruined it.....I had to tell him this in reverse). I know that isn't a fair analogy.......but I have a SERIOUS guilt complex anyway and feel horrible!!!

Please take care and keep us posted on how you're doing!! I am inclined to think positively that it is just a nasty bruise that will resolve once the initial trauma goes down!!

Wom "mom!" LYou are too cool! You should have been my mom, had she washed my MP3 player (though they didn't exist when I was a kid), she would have only said "shouldn't have left it in your pants, now" or "you know you can wash your own cloths if you don't like it."

"Mom" rocks!
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Old 01-30-2009, 09:18 AM #6
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Quote:
Originally Posted by Dubious View Post
Wom "mom!" LYou are too cool! You should have been my mom, had she washed my MP3 player (though they didn't exist when I was a kid), she would have only said "shouldn't have left it in your pants, now" or "you know you can wash your own cloths if you don't like it."

"Mom" rocks!
Ok.....now I feel even WORSE (because I THOUGHT each of those things your Mom would have said even though I didn't say it.....at least not to where he could hear it!!). Would someone tell my poor 15 year old that their "Mom rocks"??? He doesn't quite see it yet. Can I adopt you instead???
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Old 01-30-2009, 10:43 AM #7
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Quote:
Originally Posted by GalenaFaolan View Post
I agree with Dubious that a block done right away might calm it down and stop it from taking over the foot and leg. In my, non doctor medical opinion, by they symptoms it sounds like the rsd is trying to take hold. Your pm doc definitely needs to know and do something right away.
Totally and completely agree.

Mike
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