Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-31-2009, 01:04 AM #1
Imahotep Imahotep is offline
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I've had a very wide range of symptoms. Some are serious but most are more laughable like polka dot pain. There's been a lot going on with my ears since the beginning including a lot of tinnitus and a little of the dropping out.

I take cod liver oil for arthitis and it causes increased wax in the ears which sometimes makes them itch uncontrollably. It's almost more like a panic attack than pruritis.

Much of the trouble is in the left ear but I cut my right ear in the spring and now have a little RSD in it.

There's never a dull moment.
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MominPainRSD (01-31-2009)
Old 01-31-2009, 11:57 AM #2
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I too have TMJD, I've had it for years, long before my rsd diagnosis.

Following a 2nd infusion of Pamidronate a few years back I had a horrible reaction that cause loud roaring motor sound in my head. Pamidronate is from the family of bisphosphonates. While they were able to calm it down with steroids and 4 weeks of HBOT the loud ringing kept returning. There was no explanation for this to keep happening.

I was taken off didrocal and it is recommended that I avoid any medications that would be prescribed for bone loss. I found when placed on an antibiotic that they noise levels increased so I was switched to another medication for that infection. My dr. did not want to keep giving me steroids because of the osteoporosis issues with rsd.

Ultimately my dr. ended up giving me a steroid injection directly into my ear drum (yes very painful) but well worth it because it stopped the noise. I sustained some hearing loss but it is only in the low tones. Now I know why Van Gogh cut his ear off and was considered crazy. Thank good they were able to stop it because I did feel like I would go crazy too.

I still have some low humming from time to time and occasional mild vertigo.

I am very cautious about taking any new meds and do what I can to stay healthy, avoid caffeine, sugar, alcohol, etc... I am now taking Ginkgo Biloba and Coenzyme Q10 as some studies have suggested that they may help.

Here is a link to my government health site that offers information about tinnitus. http://www.healthlinkbc.ca/kbase/top...it/hometrt.htm

I hope you are able to find some help for this.

MsL
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MominPainRSD (01-31-2009)
Old 01-31-2009, 12:11 PM #3
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Further to the above posting I did also want to mention that my TMJ did become worse after my RSD diagnosis. Although the doctors tell me they are not related I believe it is all interconnected. Of late I have been focused on reduced inflammation, improved circulation through diet and exercise and feeling much better overall.

Here is the link to the information about managing TMJ, there are some good suggestions. http://www.healthlinkbc.ca/kbase/top...69/descrip.htm
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