I can hear but have a lot of ear pain on the one side. I thought it was from the severe eye pain I have but now not sure. I have been to ear specialist,gp,pain docs etc. It feels like a lot of pressure,burning sometimes,and like someone stuck something in my ear. I don't have a lot of advice other then I too need to go back for another mri of my brain.

Actually, my hearing has improved since I stopped taking a muscle relaxant during the day (I suspect now it was a combination of blood pressure and a sinus infection getting started). I still get that fluid feeling and sound in there (I just started antibiotics for the infection last night).

The eye pain could be caused from the TMJD as well. Also, the trigeminal nerve runs from your ear to your eye, nose, and mouth (approximately) so if anything is pressing on that along that nerve, the pain can be felt on that whole side of your face.

I had a detailed Tomogram, which is basically a bunch of specialized and detailed xrays.......like, 50 of them. It took over an hour. All it did was show degeneration in the bone but that I am not a surgical candidate. There is nothing else they can do for me.

I think we should consider a strong connection in the TMJD and the RSD. The pain is so similar in both and I have proven bone degeneration. I cannot afford to follow up with anyone at this point to confirm, but will as soon as I can. I cannot live with this pain for the rest of my life.

I could be wrong, but I think MRI's are useful in looking closely at soft tissue and contrast, while xrays (or the equivalent) are best in viewing bony changes.

Which came first for you?? Your RSD or your TMJD??? How long have you had each??? I am very interested in the possible connection.

I am SO sorry for your pain.....I totally understand it. It makes eating, talking, even flossing your teeth painful. I pay dearly the next day if I eat anything crunchy. Please take care and I really appreciate your input!!!

Hi Their,
BUT.

Here is a link that relates them together, BUT WHY????

By the grace of God, my pain levels are a one today.

Much Love, Roz

http://www.tmj-pain.com/tmd-related.htm

Roz,
How WONDERFUL!!!! I am so glad you are having a good day!!! I hope this decreased pain trend continues for you!!! Best wishes!!! Enjoy your day!!!!!

roz happy that your pain is low today. mom rsd then tmj but mom recently found out that she also has it so maybe genetic who knows. my i also have rsd in my face. i had to have my wisdon teeth out in 00 and thought it was just pain from that when they used to clamp to open my mouth it dislocated. then after words he asked if it clicks or any pain and i said yes
he looked you can feel it move side to side

i have had lock aw so many times i couldnt tell ya . but really right now the steriod shots have been helping and i take zanaflex for my rsd and it helps with the rsd but the pain is out of portion it think that what tmj is i think my mom says she doesnt have the same kind of pain sometimes she says its bad but takes advil and it helps but like you said sometimes the zanaflex makes me not hear right also i like you i think that its a bp thing

Angel,
I am so sorry for your difficult road. The constant pain is so exhausting. I've had TMJD for 4 years, RSD for 2 months. Both are debilitating. I, too, take Zanaflex at night. It was when I tried taking it during the day as well that my BP would drop and make me feel so exhausted. The muscle spasms are getting bad in my legs, so they may need to try me on something else. Skelaxin gives me terrible headaches. I'm going to ask about the Baclofen.

Yes, the Advil usually takes care of most of the pain with the TMJD. The few times I've been on steroids from my back have been the least pain I've been in for years, as well.

I'm so sorry you have RSD in your face. Mine is in my feet and the pain is in my legs as well, but I can manage that. I can't imagine how horrible it must be to have it in your face as well. I do think it may be spreading to my hands now, but that hasn't been confirmed. I am noticing redness on my palms, aching and prickly sensations. I never would have thought anything about it if I didn't already have RSD in my feet and knew what it feels like.

I guess we all just deal with what we have to and do the best we can. It is amazing what the human body can tolerate when it has to. I hope you are having a good day!! Talk later!!

Hi thanks. My pain started and is still the worst in the inner ankle/foot/calf. Then over a year ago I developed severe eye pain/bleph/dry eye/floaters. I went to about 40 eye apts and 7 specialists for this eye condition alone and it is only worse with treatments. I then developed severe face pain on that side that runs to the ear again went to more specialists with no answers and or relief. I have had many diagnostic mri,emg,xrays I could go on for the leg and rsd and I have peripheral neuropathy. I have had little success with treatment though I am hunting for a new pain doc but I have seen what are supposed to be top rsd pain docs to be let down. I wish I had more answers for you and others. I wish I could find a doctor who would make more connections to all the symptoms but they don't. I am just hoping with proper pain control that it will help all the areas I have problems with. Hang in there and I too am sorry for your and everyones pain and conditions.