Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-01-2009, 03:44 PM #2
kelly6449ed
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kelly6449ed
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Hello kayT

And welcome to the right place to help with your questions,
I am so so so so sorry to hear you have RSD and you are just to young,
there is also a young lady on here that I am sure when she see that you are both the same age she can answer a lot of what you are asking,
(You know who you are) I am 44 and I am stock at how much she knows,
so, here we go, sweating! oh yes that is something RSDers have, and its no fun
I swaet all over, from head toe, I have full body RSD, its all day and the night, Nights are the worst for me, I can be ice cold, and sweat my neck, legs feet arm, face, hands, my neck is odd, it sweats like if I have a reckless on,
it runs off me like crazy, and no I know its not hot flash's had my esterden
check, its the RSD, my back sweats also, it drives me nuts, I never was a sweater, before, I use to tell everyone I was over heating,
its an odd feeling, my body can be burning up, in some parts and ice cold in outer places, and sweaty,I can no longer wear makeup it just sweats off, then I also turn colors from red to a pail white
I do have pics, so you can see the red, I am adding them in here,
http://flickr.com/photos/rsdcrps/show/with/3132061607/
I started taking pic, for one I would search all over to see if I could find a pic of anyone else that had what I was seeing going on with my body,
I never met anyone with RSD before, and felt so alone, not no more,
its like a family on here, everyone will try and help you so ask ask ask
that is the best thing you can do, learn about what is going on,
we all will do are best to help you though this, and within time you will be able to know more about your RSD then anyone else, ok,
never feel like what you are asking is something we have not ask are self's
and yes swelling, I get that also,
RSD is not the same in any of us, so we learn and support each outer the best we can do, and you are not alone,

I hope you will keep posting, no matter what you ask, before long you will
be able feel like you can help the next person that is new on here,
at least that is how I got, smiles
it is very helpful for you to learn as much as you can about what you have

You are just to young to have this I am so sorry, it just brake my heart
I wish you the very best and you well see we are all here for each outer

Peace
Kelly

PS one more thing,
I know this can be very scary to a newbe, at any age, so do not forget we are here for you, ask , vent, yell, cry, laugh, smile, learn,
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