Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-30-2006, 07:31 PM #1
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Default So I stayed home sick today...

for the 7th time this year. and its only November. My school only allows 10 absences before you are considered habitually truant and you have to have a big ol court date and fines and community service. ick. Hopefully they will accept my doctor's note saying that i was excused by him for it. although, they didnt last year, which meant that i had to weasel my way out of the court date. it was pathetic.


but anyways, i had to stay home because i keep throwing up. Now, this pretty much happens all the time. im surprised i dont weigh like 70 pounds, considering every time i try a new drug or treatment for my RSD i vomit for about 2 days straight. Its getting kinda ridiculous (dare i even say ri-diga-diga-donk-ulous). I mean, can lidoderm patches even cause nausea as a side effect? I know that they list it as a side effect, but i mean, really how little is the chance that it actually happens to people?

And of course this spurs on my parents saying "well, we arent going to try anything new then if it makes you sick". i mean i get where theyre coming from, but i NEED something to work, otherwise i might go crazy.

Ugh, i think im gunna go hang out in my bathroom for about another hour, hopefully everyone else is having a better day!

anna
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Old 11-30-2006, 10:02 PM #2
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anna,

ANY med can cause nausea (and/or vomiting)......my hub had some kind of weird side effect one time, and the doc was showing us in the PDR all the different side effects listed for all the different kinds of meds and he pointed out to us that one of the side effects of the anti-nausea drug compazine is actually NAUSEA......how awful is that to take something like that and it makes u worse?

one thing u might want to consider to keep the attendance nazis off your back is to ask about home-bound instruction....if u r listed as a home-bound student (even if u only have the at-home instructors occasionally) it might make a difference.....the rules r different from district to district, so no promises, but it might be worth while to find out.

hope tomorrow is a better day for u.
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Old 11-30-2006, 11:45 PM #3
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Default Young Lady!!

Listen to your parents. ALL OF US!!!!! A very important thing to remember when taken liboderm patches is location. My doc was strict with me about where I put them. Not near my "special area" and what have, etc. Also you can cut them up. Try this. Cut the patch in half. Try only using a quarter to half a patch to start. If no nauseau than thats the ticket. Than after a day or so cut away less until your body can tolerate more and than eventually you should be able to tolerate the whole thing!!

That is what I had to do. And it worked!!

Chin Up!!!!

Mark

P.S. EAT SOUP!!!!!!!!!
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Old 12-01-2006, 03:07 AM #4
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Hello Anna: Liz is right. Home schooling may be just the thing to help you. I had home schooling in fourth and eighth grades due to severe asthma and it worked out well. I had classes three times a week if I remember correctly. It is so much easier when you are the only student. I am talking about teachers actually coming to the house to teach you, not being taught by your parents. I think if your parents tried to teach you it may cause you more stress. Perhaps if your doctor recommeded home school for you, your school district would send a teacher to your home. It is worth a try.

I don't think it is fair to you to force you to attend school when you are sick. Sometimes rules are so silly and serve no purpose. I never once had a gym class while in school but in high school I had to put on a gym suit and watch the other girls have gym and then get dressed again when their class was over. If they were outside, I sat in the bleachers and shivered. Of course I got sick. To make matters worse, in senior high I was shocked to get a "D" on my report card for gym. I was told they couldn't fail me with an "E" so I got a "D". They wouldn't let me take another class instead of gym, either. Sheesh!! Regards, Lil
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Old 12-01-2006, 08:26 AM #5
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frustrating, isn't it? i used to miss a whole lot of days from school when i was younger because of migraines. (like a gazillion years ago) it's a wonder i even graduated. sounds like your parents just don't know what to do anymore either. the only thing i can offer is peppermints or potatoes to get your stomach back on track. for whatever reason they seem to settle and be easier to digest, lol not together though.
you might talk to your doctor about trying some of the Rx antinausea meds. phenergan is my friend. wouldn't it be nice if your school had cyber classes?

thinking of you and praying for a good outcome.

hugs and prayers
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Old 12-01-2006, 11:31 AM #6
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Anna,

I hope this finds you feeling better. It is so frustrating that you get sick when you start taking something to make you feel better, and it sounds as if you are really sensitive to medications. One thing I did a few years back when some of my meds make me nauseated was that I talked to my Dr and he prescribed me a med that was for vommiting and nausea and it did seem to help a lot when I had to take my meds that made me sick, so that is one thing you might do.

I wonder if you had your Dr to write a letter to your school regarding your illness if it would do any good? Especially if it comes to you missing so many days that you have to have a hearing. If you have medical issues that keep you from attending classes and have a Dr excuse it just doesn't seem as though they could punish you for that. It isn't like you are staying out partying late and just can't get up for class, and you're not missing just to stay home and watch soap operas..LOL

Good luck and I hope you find something to help you without this horrible side effect.

Hugs,
Janet
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Old 12-01-2006, 01:39 PM #7
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Dear Anna -

It is an outrage that a student with RSD should have to worry about illness related absences from school!

Under the federal Individuals with Disabilities Education Improvement Act (IDEA), school are required to make accommodations for students with medical disabilities. By all appearances, your school is not. I'm not sure if it's a stable ISP address, but try clicking here for more information:

http://answers.ed.gov/cgi-bin/educat...i=&p_topview=1:
The Individuals with Disabilities Education Act (IDEA) aims to ensure that all children receive a free appropriate public education (FAPE) and special services to assist in meeting their educational needs.

Under Part B of IDEA, each state and its public agencies must ensure that a free appropriate public education (FAPE) is made available to all students with specified disabilities in mandated age ranges, and that the rights and protections of Part B are extended to eligible students and their parents. FAPE includes, among other elements, the provision of special education and related services provided at no cost to parents, in conformity with an individualized education program (IEP).

The IEP is the major mechanism for ensuring a child receives FAPE. The IEP serves as a blueprint for the child's special education needs and any related services. The IEP team consists of the parent(s), the student (if appropriate), at least one of the child’s regular classroom education teachers, at least one of the child's special education teachers, and a qualified representative of the public agency.

If the parent and the local school district staff cannot agree on the content of the IEP, the parent can ask for a due process hearing, and an impartial hearing officer can make an independent decision in order to resolve any disagreements. A mediation process must be available when a due process hearing is requested
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Additional links of interests include the National Dissemination Center for Children with Disabilities at http://www.nichcy.org/ and the Department of Education's "OSEP/MSIP State Contacts Part B and Part C" which includes the names and phone numbers of contact officers you or your parents could reach if you have difficulty in either setting up an IEP or getting the district to live by the terms of the contract that comes out of it. http://www.ed.gov/policy/speced/guid...tact-list.html (I would start with the "Customer Service Specialist", followed by the "Part B Contact" and then the Wisconsin "Team Leader." Please note that all of these phone numbers are in the Department of Education in Washington D.C.)

I remember this stuff vaguely from a number of years ago when my oldest son had to go through the process. The key point is that they have to give you an IEP within 60 days of the time you request it: school vacation times not included. They may or may not consider letters from outside doctors, I've forgotten how the rules work exactly. In any event, any letter your should submit from your physician should be a detailed as possible. Hopefully s/he could actually be there at any IEP you and your parents could set up. Sometimes, and especially when a lot of money is on the line, in terms of the requested accommodation, people are advised to have outside lawyers who specialize in "ed law."

You don't deserve these troubles. And as a matter of law, you should not be burdened with them. Good luck.

Mike

Last edited by fmichael; 12-01-2006 at 02:50 PM.
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Old 12-01-2006, 09:12 PM #8
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Hi,
I have days where I feel nausea as well, it is just in the mornings. With me though I don't think it's the meds. My youngest son is visually impaired. A 504 plan was brought up for him, here is a bit about it. You are in a reg. class settings. Also schools have special restrooms for students that are not well, they are required by law. Big Huge Hugs, Roz

http://www.wrightslaw.com/info/sec504.index.htm Hugs, Roz

http://www.chtu.org/504.html

Last edited by buckwheat; 12-01-2006 at 09:45 PM.
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Old 12-01-2006, 09:37 PM #9
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IEP's vs. 504 Plans
http://www.slc.sevier.org/iepv504.htm

More on 504 plan

http://concordspedpac.org/Section504.html

Last edited by buckwheat; 12-01-2006 at 09:54 PM.
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Old 12-02-2006, 01:12 PM #10
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thank you soooooo much to everyone who responded. I used to take anti-nausea medicine almost everyday over the summer, and somedays it seemed to help, other days not so much. i think im going to talk to my doctor next week when i see him about it. its kinda ridiculous that i cant take any medicine for more than a week without being miserable.

I was going to talk to my school's guidance counseler about my "habitually truant" status on friday, but...

we had a SNOW DAY!!!!

Funny thing is now that i havent been to a full week of school in a month now. I mean, one week we got off thursday and friday for conferences, and one week was thanksgiving, but in the month of november ive missed 5 days (1 being the snow day)

but ive gotta go get ready for a little date
thanks for everyones help, it means soooooooooooooooooooooooooooo much to me.

anna
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