Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-08-2009, 12:12 PM #8
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
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Kelly,
I will reply more later, but one thing I wanted to mention is that 10 years ago, the Ortho said that my back was "fused" from spasm from my mid back to my bottom. I could not bend or twist or move at all......but it was from spasm. It took a LONG time working with it and doing PT and exercises at home now but I now have a "normal" spine with movement (I even had a baby 5 years ago!!).

You are so disabled, you may be eligible for a PT to come to your house and work with you??? Do you have SSI or SSD??? I am way out of my realm of understanding of how all of this works, I just want to get you HELP. My friend is a hospice nurse in Georgia and she visits homebound people in their homes. If there is any way you could get PT, I think that could help you in conjunction with good muscle relaxants and proper pain control. I honestly believe there is hope to get your mobility back and ANYTHING would be an improvement and give you a better quality of life.

I'll PM you in a while!! Thinking of you and wishing you a good day today!! Hugs!!

Last edited by MominPainRSD; 02-08-2009 at 12:13 PM. Reason: error in spasm location
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