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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Hello Everyone
Please pray for Andrea, I just got an update from her Mom, and things have change, here is a copy of the letter from her Mom, I guess I was overly optomistic yesterday. Andie is awake, but she does not know us and she seems very frightened. It was a long difficult night. Gus and I took 2-3 hour shifts all day right up till about 1am. Then they brought a big chair into her room where I thought I could rest so I convinced Gus to go upstairs (we have a room in the hospital where we can lie down) and get some sleep. You would think I was new to this what ever made me think I could sleep in a hospital??? Andrea ran a fever most of the night and her heart rate was very elevated. The resident was called in and he listened carefully to her heart and watched over her but there really wasn't much they could do at that point. It's now late afternoonon Tuesday. I went back to the hotel around 10 to try and sleep and shower but I could not really sleep. But I layed down for a couple hours sleeping off and on. I am on a break right now they are giving Andrea clean sheets and gowned. I am having a much harder time dealing with this then I thought I would.She looks so frightened she can't talk and her breating is so labored. Gus saw her x-rays this morning and her right lung has fluid in the bottom of it. Dr. Cantu and the heart doctor are watching it carefully. I think I am feeling so bad becasue I can't comfort her. Anyway I feel like I am rambling but I needed to let all of you know what is going on. Keep her in your heart. thank you everyone, Kelly |
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"Thanks for this!" says: |
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#2 | ||
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Hi Folks,
It is no surprise to me. They needed to get to the root of WHY she has RSD in the FIRST PLACE. ![]() On a very serious note, I wonder if any MD would of gone thru that treatment themselves. Hugs, Roz |
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#3 | |||
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Member
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I'll keep her in my thoughts and hope this clears up soon and she gets better. Sending lots of hugs and good thoughts her way! I've heard the doc there is absolutely the best of the best, so I know she's in great hands.
Hugs, Karen
__________________
Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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"Thanks for this!" says: | MominPainRSD (02-10-2009) |
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Quote:
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#5 | ||
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Guest
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If you really care about your friend, just ask her mom if her sed.. rate is ELEVATED.
On a serious note, your friend is in a sink or swim issue. FAITH WITHOUT WORKS IS DEAD |
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#6 | ||
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Quote:
Kelly is only trying to honor her promise to keep us posted, both at OUR request and at Andrea's. Last edited by MominPainRSD; 02-10-2009 at 08:00 PM. |
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#7 | ||
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Quote:
Elevated SED rate is VERY serious. This is why I steped in. I am trying to help. The family really needs to know if their is one. Hugs, Roz Last edited by Curious; 02-10-2009 at 07:58 PM. Reason: Per NT Guidelines. Also, all caps is yelling, so I changed that to cool the tone |
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"Thanks for this!" says: | Jomar (02-10-2009) |
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#8 | |||
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Co-Administrator
Community Support Team
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Hi friends,
Lets remember the written word can come across differently to each of us and we may take things one way when the poster didn't mean it to sound that way. It's really a good idea for each of us to re read our own posts before submitting it, just to check on how it sounds and how it might come across to others. A reminder - *We will edit non supportive comments if they aren't edited by the poster themselves*
__________________
Search the NeuroTalk forums - . |
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#9 | |||
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Administrator
Community Support Team
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just a gentle reminder here that this is not the place to have disagreements.
this is a support thread and any personal issues between members needs to be taken to PM please. thanks
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#10 | ||
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Guest
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Dear Folks,
I was offered the Coma treatment and IV Ketamine. My only concern is Andrea at the present time. IT REALLY IS. Much Love, Roz |
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