Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-10-2009, 06:28 PM #1
kelly6449ed
Guest
 
Posts: n/a
kelly6449ed
Guest
 
Posts: n/a
Default please pray for Andrea update, from her mom

Hello Everyone
Please pray for Andrea,
I just got an update from her Mom, and things have change,

here is a copy of the letter from her Mom,

I guess I was overly optomistic yesterday. Andie is awake, but she does not know us and she seems very frightened. It was a long difficult night. Gus and I took 2-3 hour shifts all day right up till about 1am. Then they brought a big chair into her room where I thought I could rest so I convinced Gus to go upstairs (we have a room in the hospital where we can lie down) and get some sleep. You would think I was new to this what ever made me think I could sleep in a hospital???

Andrea ran a fever most of the night and her heart rate was very elevated. The resident was called in and he listened carefully to her heart and watched over her but there really wasn't much they could do at that point.

It's now late afternoonon Tuesday. I went back to the hotel around 10 to try and sleep and shower but I could not really sleep. But I layed down for a couple hours sleeping off and on.

I am on a break right now they are giving Andrea clean sheets and gowned. I am having a much harder time dealing with this then I thought I would.She looks so frightened she can't talk and her breating is so labored. Gus saw her x-rays this morning and her right lung has fluid in the bottom of it. Dr. Cantu and the heart doctor are watching it carefully. I think I am feeling so bad becasue I can't comfort her.

Anyway I feel like I am rambling but I needed to let all of you know what is going on. Keep her in your heart.

thank you everyone,
Kelly
  Reply With QuoteReply With Quote
"Thanks for this!" says:
buckwheat (02-10-2009), Jomar (02-10-2009), MominPainRSD (02-10-2009)

advertisement
Old 02-10-2009, 06:47 PM #2
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

Hi Folks,

It is no surprise to me.

They needed to get to the root of WHY she has RSD in the FIRST PLACE. I only hope she is on IV antibiotics.

On a very serious note, I wonder if any MD would of gone thru that treatment themselves.

Hugs, Roz
  Reply With QuoteReply With Quote
Old 02-10-2009, 06:57 PM #3
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

I'll keep her in my thoughts and hope this clears up soon and she gets better. Sending lots of hugs and good thoughts her way! I've heard the doc there is absolutely the best of the best, so I know she's in great hands.

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
MominPainRSD (02-10-2009)
Old 02-10-2009, 06:57 PM #4
MominPainRSD MominPainRSD is offline
Member
 
Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
Member
 
Join Date: Dec 2008
Posts: 264
15 yr Member
Default

Quote:
Originally Posted by kelly6449ed View Post
Hello Everyone
Please pray for Andrea,
I just got an update from her Mom, and things have change,

here is a copy of the letter from her Mom,

I guess I was overly optomistic yesterday. Andie is awake, but she does not know us and she seems very frightened. It was a long difficult night. Gus and I took 2-3 hour shifts all day right up till about 1am. Then they brought a big chair into her room where I thought I could rest so I convinced Gus to go upstairs (we have a room in the hospital where we can lie down) and get some sleep. You would think I was new to this what ever made me think I could sleep in a hospital???

Andrea ran a fever most of the night and her heart rate was very elevated. The resident was called in and he listened carefully to her heart and watched over her but there really wasn't much they could do at that point.

It's now late afternoonon Tuesday. I went back to the hotel around 10 to try and sleep and shower but I could not really sleep. But I layed down for a couple hours sleeping off and on.

I am on a break right now they are giving Andrea clean sheets and gowned. I am having a much harder time dealing with this then I thought I would.She looks so frightened she can't talk and her breating is so labored. Gus saw her x-rays this morning and her right lung has fluid in the bottom of it. Dr. Cantu and the heart doctor are watching it carefully. I think I am feeling so bad becasue I can't comfort her.

Anyway I feel like I am rambling but I needed to let all of you know what is going on. Keep her in your heart.

thank you everyone,
Kelly
Oh Kelly.....this is so disturbing. I pray it is just the residual effects of the medicine and the fever that are causing her amnesic side effects. I have heard it can do that. Let's not give up hope for a full and complete recovery for her. Thank you so much for keeping us posted on her condition. We are all pulling for her and send prayers along to her family as well.
MominPainRSD is offline   Reply With QuoteReply With Quote
Old 02-10-2009, 07:01 PM #5
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

If you really care about your friend, just ask her mom if her sed.. rate is ELEVATED.

On a serious note, your friend is in a sink or swim issue.
FAITH WITHOUT WORKS IS DEAD
  Reply With QuoteReply With Quote
Old 02-10-2009, 07:19 PM #6
MominPainRSD MominPainRSD is offline
Member
 
Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
Member
 
Join Date: Dec 2008
Posts: 264
15 yr Member
Default

Quote:
Originally Posted by buckwheat View Post
If you really care about your friend, just ask her mom if her sed.. rate is ELEVATED.

On a serious note, your friend is in a sink or swim issue.
FAITH WITHOUT WORKS IS DEAD
Roz,
Kelly is only trying to honor her promise to keep us posted, both at OUR request and at Andrea's.

Last edited by MominPainRSD; 02-10-2009 at 08:00 PM.
MominPainRSD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Curious (02-10-2009), Jomar (02-10-2009)
Old 02-10-2009, 07:25 PM #7
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

Quote:
Originally Posted by MominPainRSD View Post
Roz,
Kelly is only trying to convey a message from Andrea's family. Kelly did not tell Andrea to have the procedure. That was Andrea's choice, and one that was obviously made after years of relentless pain and suffering, which we can ALL relate to. Kelly is only trying to honor her promise to keep us posted, both at OUR request and at Andrea's.

If your tone is not meant to come across so harsh and angry in this matter, you may wish to rethink your word choice and tenor. Kelly was only asking for our prayers. You have a choice to pray for Andrea or not.



Elevated SED rate is VERY serious. This is why I steped in.

I am trying to help. The family really needs to know if their is one.



Hugs, Roz

Last edited by Curious; 02-10-2009 at 07:58 PM. Reason: Per NT Guidelines. Also, all caps is yelling, so I changed that to cool the tone
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Jomar (02-10-2009)
Old 02-10-2009, 07:43 PM #8
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,700
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,700
15 yr Member
Default

Hi friends,

Lets remember the written word can come across differently to each of us and we may take things one way when the poster didn't mean it to sound that way.

It's really a good idea for each of us to re read our own posts before submitting it, just to check on how it sounds and how it might come across to others.


A reminder -
*We will edit non supportive comments if they aren't edited by the poster themselves*
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (02-10-2009), Curious (02-10-2009)
Old 02-10-2009, 07:45 PM #9
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 28,478
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,478
15 yr Member
Lightbulb

just a gentle reminder here that this is not the place to have disagreements.

this is a support thread and any personal issues between members needs to be taken to PM please.

thanks
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Abbie (02-10-2009), Curious (02-10-2009)
Old 02-10-2009, 07:53 PM #10
buckwheat
Guest
 
Posts: n/a
buckwheat
Guest
 
Posts: n/a
Default

Dear Folks,

I was offered the Coma treatment and IV Ketamine.

My only concern is Andrea at the present time. IT REALLY IS.


Much Love, Roz
  Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Please pray for my Mom Nik-key Sanctuary for Spiritual Support 20 01-07-2009 09:50 AM
Pray for these who are on this video drug resistant TB...-& s pray one for another... lou_lou Sanctuary for Spiritual Support 0 10-03-2008 06:21 PM
Pray for our son please Corkybird Sanctuary for Spiritual Support 99 06-07-2008 10:55 AM
Please pray kimmydawn Sanctuary for Spiritual Support 28 02-18-2008 10:27 PM
Please pray for me Looking4hope Sanctuary for Spiritual Support 20 02-18-2008 02:31 PM


All times are GMT -5. The time now is 09:45 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.