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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-10-2009, 08:00 PM | #11 | ||
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Yappiest Elder Member
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Roz,
Try not using caps and maybe bolding parts that you are stressing? Using capital letters on the internet is considered yelling at a person.
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"Thanks for this!" says: | Jomar (02-10-2009), kelly6449ed (02-10-2009) |
02-10-2009, 08:28 PM | #12 | |||
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I just wanted to let you know that my prayers are with you all. Please keep faith that everything will be alright. You have the support you need here. Know that Andie and her Doctors will be covered with prayers. Keep us posted, please. All the best all of you. Di |
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"Thanks for this!" says: | kelly6449ed (02-10-2009), MominPainRSD (02-10-2009) |
02-10-2009, 08:32 PM | #13 | ||
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Hello Everyone
and thank you, I just wanted to update you on one of us, she is one of us, she may not be part of the message board, but she is one of us, no matter what, thank you for all your kind words, I also send them on to her family so they know there are lot of us out here that care no matter who we are she needs are prayers now, Roz, I really did not know how to take it what you said, and I am not a Dr non can I ask about what her Dr's are doing there for her, yes I care very much for her as for everyone that is fighting this, monster please understand, they are in Mexico, and they are not on line all the time, her family just keeps us posted, and I am sure they are very worried about Andrea, just like I am and so many that do not know her, we talk before about her heart, pro and she was born with something wrong with it, but its not my place to talk about that on here, so please understand, its not that I do not care, I can not ask them something like that, she has some of the best Dr's taking care of her and I am sure they know about what to do for her, and god willing, he will hear are prayers and she will pull out of this, please do not ask me about something I cannot do and then say if I care I been on line day and night looking for any word about her, just like I would do for anyone of you, again thank you all for you support, even you Roz, peace and love Kelly |
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"Thanks for this!" says: | DianaA (02-11-2009), MominPainRSD (02-10-2009) |
02-10-2009, 08:34 PM | #14 | |||
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kelly
iam so sorry that she is having problems please let her family know that they are in my prayers i have been in that situiation and it helps for the family to know that peopple care. i pray that she can get better soon -carrie |
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02-10-2009, 09:12 PM | #15 | ||
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Thank you Carrie
To everyone of you, am passing all your kind words on to her family, and trust me when I say this, they have told me how much it means to them that Andrea has so many that care, thank you,very very much, please and a big grape hug Kelly PS: Karen, did I get any miss spelled words? for all of you that do not know, my spelling is not the best, so somethings I will ask Karen to help me, smiles as she is the one that seen one day I thought I was having a stock, smiles, so if anyone ever finds something I really messed up, just ask me to please explain it, smiles, |
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02-10-2009, 10:02 PM | #16 | |||
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:-D You're doing awesome girlfriend! LOL Although a great big hug is good, I rather like your big grape hug! LOLOL I'm partial to grape anyway. :-D You go girl!
Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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02-10-2009, 10:46 PM | #17 | ||
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I might respectfully add, sedimention rate (as is c-reactive protein) is a relatively non-specific test that is never ordered by itself. By itself, it means practically nothing. It could signify an inflammatory situation that is, or has occurred as it will remain high even after the problem has passed, so I guess the my point is that it is ordered as part of a panel that was obtained to confirm certain clinical findings. A positive sed rate in conjunction with other positive tests on the same panel, might have a more definitive and meaningful trend. Sedimentation rate usually is not very significant until it is approaching 2-4x normal and even then, is usually re-run to rule out false positives. So I am not sure where that was going... |
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02-10-2009, 11:11 PM | #18 | ||
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I hope these lines find you doing well. I am sure they are keeping her vitals stable and doing what they can for that. But in my own case I had Endocarditis, the only thing that showed up was an elevated sed rate. I was DX with Bartonella, with a neg.-blood test. From my own walk, their are much more false neg-, than positives. I am very thankful I had MD's that knew what they were doing. Hugs, Roz Last edited by buckwheat; 02-10-2009 at 11:26 PM. |
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02-11-2009, 07:56 AM | #19 | ||
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This is a message from Andreas Mom,
I have not been able to bring my self to sending her a message, I do not know what to say, keep Andrea in your prayers, thank you Hello again my friends, It is 2 am and things have not been going well for many hours now. Gus left to go get some rest about 8:30 and things just went down hill. Andrea had been running a fever and had an elevated heart rate all day. But right after Gus left it just went from bad to worse. Her fever went to almost 104 and her heart rate was 140 and up. She was breathing wya to fast and could not slow it down. Her fingers were purple from lack of oxygen and she was very pale. Not to mention her BP was through the roof. I asked the doctor in the ICU what was going on but he only speaks a little english and I only speak a little spanish we just could not communicate. There was no one to translate. I was so frightened.Long story short they tried all kinds of things to bring her fever down and nothing worked. I called Gus about 12:30 I couldn't take being alone anymore. Dr. Cantu came in at 1:30 and as soon as he saw her he decided he had to re-intabate her. He said she needed a break she was working way to hard. They are in there working on her now. Thank you all for your support I don't know how I would do this with out it. Leslie |
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02-11-2009, 09:36 AM | #20 | |||
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kelly,
thanks for keeping us up-to-date....i know this hasn't been easy for u either.....and please make sure that andre'a family knows that all of us r pulling for her.
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best to all, liz |
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"Thanks for this!" says: | kelly6449ed (02-11-2009), MominPainRSD (02-11-2009) |
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