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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-08-2009, 07:25 PM #2
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
Member
 
Join Date: Dec 2008
Posts: 264
15 yr Member
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Originally Posted by RC831MC View Post
Hello my name is Rich
I have had RSD for15+ years i started like most on by taking meds then blocks and on to a morphine pump, the one thing that worked well for me was the scs because of problems had to be removed (no longer an option for me) left with little choice and alot of pain and swelling my Dr offered Deep Brain Stimulator (not FDA approved) i had it for about 8 years until a wire on my skull broke. last week i had Bi-lateral DBS installed,it took 7.5 hours which for most of you are wide awake it is working but i have to wait to turn it up (about 2 weeks) Has anybody else had DBS for RSD?
Hi Rich!!

I wanted to welcome you to the forum. I am SO sorry about your difficult road with RSD. It sounds like you have already had most of the possible medical treatments for it. I have never heard of the DBS for RSD but am VERY curious to hear what other members have experienced or heard regarding it. Where is your RSD located??? Have any of the surgeries caused it to spread???

I wish you the best of luck with your treatment. I hope and pray that you find good relief when you are able to turn it on next week!! Please keep us posted on how you are doing. Welcome again to our little family. You will meet many caring, supportive, compassionate people here!! I hope to talk to you soon!!
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kelly6449ed (02-13-2009)
 

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