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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-12-2009, 05:13 PM
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momin my rsd started in my left arm after my pointer finger was amputated in a surgery, it spread to the right arm after a small injury. i now have rsd from my naval to my shoulders and all in between and my back. My DBS is turned on and working but it is on low it is doing an ok job i cant wait to turn it up. none of my surgeries have affected my rsd (knock on wood) when i had the DBS before it lowered my pain by 50% i got back to work and my family life became as it was before RSd, now that i have bi-lateral electrods im hoping for the same or even better.ill keep the reports coming as my system is turned up. thanks for the wishes |
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| "Thanks for this!" says: | kelly6449ed (02-13-2009), MominPainRSD (02-12-2009) |
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02-12-2009, 06:10 PM
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I am so glad you will be able to turn it up soon, and I hope and pray it will give you very good pain relief!! I am curious, did you have any sympathetic nerve blocks before, during, or after your surgeries to keep your RSD from spreading??? or did you just knock on wood and that did the trick???  Many of us have heard here the importance of having the preventative blocks to prepare for surgery. I am VERY glad either way that it did not spread in you. You poor dear, you have enough pain as it is. Thanks for the update and for writing back!! Keep us posted on how you're doing!!! We all wish you the best!!
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| "Thanks for this!" says: | kelly6449ed (02-13-2009) |
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02-12-2009, 07:37 PM
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rich
did you go to vanderbilt?> that is where my pain doc is and neuroguy that does dbs. he is the best neurosurgeon that i have ever seen. i wish the dbs would of been an option. he thought that since my rsd is so bad that it wouldnt be enough to have the surgery and go thro all that pain assocaited with. so did you stay here in nashville? hope you liked our city -carrie |
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02-15-2009, 12:19 PM
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Carrie Yes i did go to vanderbilt Dr Neimat was my surgeon would highly recommend him listens to the patient and really cares about what you need and can stand. Im going to turn my systems up to see how much my brain can handle,try very hard not to upset or ill have to wait a little longer. The day after my surgery i was able to be driven home then i went back to work (construction Superintendent) 5 days later. |
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02-15-2009, 09:08 PM
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i havent meet him but the whole neuro staff and pain mangament docs are the same way. dr konrad is who i see he is great i will tell you that. he is the one that is tall and glasses im glad that this is working for you and glad you are having less pain carrie |
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