Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 03-30-2009, 02:23 PM #1
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
Default It's all about proper medical documentation

If you're in the process of either getting on or switching things over in regards to Social Security Disability, then be forewarned, it's all about how well your doctors are documenting your current health situation.

On an average, most people applying for SSD take anywhere from 1 year all the way up to 2. If the doctor has perfectly documented the severity of your health problems, it is possible to get SSD through in 90 days. I know, that's how long mine took when I applied.

RSD is a rather difficult disabilty to get rated on. Because there are so many different types and situations, Social Security knows that in many cases it's just a matter of time till things either get better or it goes away altogether. For people like you who are getting worse, then Social Security is needing the time-line showing that you're still loosing ground. If there is additional problems such as circulation or blood clots, then that will scoot things through faster. Good luck, and hang on because tomorrow will get better so long as you took care of today. Bob.


Quote:
Originally Posted by eileen15565 View Post
can anyone provide any info about the process and chances of getting social security disability due to having RSD. I can't work and no longer have my profession due to RSD...
bobinjeffmo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (04-01-2009)
Old 07-14-2009, 08:53 AM #2
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by bobinjeffmo View Post
RSD is a rather difficult disabilty to get rated on. Because there are so many different types and situations, Social Security knows that in many cases it's just a matter of time till things either get better or it goes away altogether.
Is this true "in many cases it's just a matter of time till things either get better or it goes away altogether"? I've heard of people getting better and in some total remission, however, I'm hesitant to say I've read anywhere the numbers are in the "many", quite the opposite. Am I wrong in this? I hope I am.
My wife has had RSD since 2002 and is crippled from the desease. Her broken right arm has been in a brace for 6 years and has spread into her legs and back. She's been denied SSDI for 3 years, attorneys and a Congressman on board and still rejections here in Virginia. This was not a WC case, no lawsuits etc., just a simple fall and broken wrist. She's a college grad with a 25 year continuous work history.
Jimking is offline   Reply With QuoteReply With Quote
Old 07-14-2009, 06:17 PM #3
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

Very few people achieve remission. There are few I've known who had lidocaine infusions and it beat back the rsd enough that they're working again full time but not in remission. They are still taking pain meds and other meds just not as many. Keith Orsini at RSD Hope had a round of HBOT that beat back his pain but I don't know how he's doing now. He quit posting to the blog he began on his HBOT treatments. Don't know whether the effects stayed with him or went away and he ended up as bad as he was to begin with.

As to the SSDI, I can't believe she can't get it! That's utter BS! RSD is on the list of "approved" disabilities and has been for a few years now. I don't understand why she isn't being approved. It's not like she can still walk around freely and they can look at her and say, "Oh, she can still walk and move fine so therefore she can work." *rolls eyes* They would say that about me if I even qualified but since I don't it doesn't matter. I look quite "normal." lol I'll keep her and you in my thoughts that you get "justice" soon!!

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote
Old 07-15-2009, 08:46 AM #4
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Jimking Jimking is offline
Member
 
Join Date: Mar 2009
Posts: 879
15 yr Member
Default

Quote:
Originally Posted by GalenaFaolan View Post
Very few people achieve remission. There are few I've known who had lidocaine infusions and it beat back the rsd enough that they're working again full time but not in remission. They are still taking pain meds and other meds just not as many. Keith Orsini at RSD Hope had a round of HBOT that beat back his pain but I don't know how he's doing now. He quit posting to the blog he began on his HBOT treatments. Don't know whether the effects stayed with him or went away and he ended up as bad as he was to begin with.

As to the SSDI, I can't believe she can't get it! That's utter BS! RSD is on the list of "approved" disabilities and has been for a few years now. I don't understand why she isn't being approved. It's not like she can still walk around freely and they can look at her and say, "Oh, she can still walk and move fine so therefore she can work." *rolls eyes* They would say that about me if I even qualified but since I don't it doesn't matter. I look quite "normal." lol I'll keep her and you in my thoughts that you get "justice" soon!!

Hugs,

Karen
I think it is because of a few reasons. One, my wife has not been in front of a judge yet. This is our goal to get a hearing in front of a judge, not a kid who is on auto pilot and rejects out of hand, this is how my wife's lawyer put it. Two, I think Virginia is one state that it is more difficult to receive because it is in a region loaded with folks trying to receive SSDI, mid atlantic issue. Three, I'm not sure what records these SS people are viewing. My fear is that these records are incomplete and harken back to those 4 years my wife worked everyday in severe pain until she was fired, because of a lack of treatment from her doctors at the time using four different insurance companies over those many years. It was her doctor's refusal to sign a two year disability paper that clinched her termination. It was only after she was fired from her job at a very large company and when I picked up insurance at my employment to cover her that she received immediate, good treatment overnight using different doctors. There is no doubt that this company wanted her gone. She worked for them nearly 15 years, she told them she was diagnosed with RSD and when she did they increased her work load both administratively and volunteered her to help move office equipment and or anything that would put her thru pain. Complaints to HR made things worse.
All the letters of rejection from SS state that they realize she has RSD but that should not stop her from working. So my hunch is something is in those records and most likely from bad doctors from the past. Her next appeal is going to be in front of a judge in the next year. Our lawyer has stated that she will receive those records for us to view several months before the hearing.
Jimking is offline   Reply With QuoteReply With Quote
Old 07-15-2009, 06:29 PM #5
GalenaFaolan's Avatar
GalenaFaolan GalenaFaolan is offline
Member
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
GalenaFaolan GalenaFaolan is offline
Member
GalenaFaolan's Avatar
 
Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
Default

I sounds as if that may be the root of the problem Jimking. The wc docs were writing idiotic stuff in my records because wc told them to and if I had qualified for SSDI I think it would have prevented me from getting it too. You won't know until you read those records but I believe you are right in thinking there is something there.

Hugs,

Karen
__________________
Laugh until you cry, don't cry until you laugh.

Living, loving and laughing with RSD for 14 years and counting.
GalenaFaolan is offline   Reply With QuoteReply With Quote
Old 07-13-2009, 09:41 PM #6
overcomer overcomer is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
15 yr Member
overcomer overcomer is offline
Junior Member
 
Join Date: Jul 2009
Posts: 6
15 yr Member
Default

hi,
I am fairly new to this site - I received ssd 10/2008 - I had a w/c injury, had surgery on both elbows and woke after the second surgery not able to use entire rt arm/w/stiff fingers - I have not been able to use since 5/2008 - went on short term disability on my job into long term disability - I had w/c plus disability on my job so they did not want to pay the 60 % of my salary so they filed the paper work and insisted that i had to file ssd - by the time I filed, my rt hand had clawed - ss made an appt for me to see one of their md's after they received my medical records - I had a physical by them plus films and a few weeks later they approved me from the date of disability which was 4/2008 (first surgery - had to wait 5 mos as waiting period) even though I did not apply til 10/2008 so you get back pay from time of disability - I don't know if by my job filing paper work helped or not but my lawyer did not file for me - It was a blessing as I had no problems w/any of this, my job did not fight me or give me a hard time but acknowledged their part in my injury - hope this helps - by the way, I am from atlanta, not sure how different other states are-
overcomer is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Received social security disability sassypants Depression 7 08-20-2009 06:14 PM
Social Security speeds disability claims review BobbyB ALS News & Research 0 10-27-2008 09:09 AM
Social Security’s clogged pipeline Disability claims languish... Stitcher Parkinson's Disease 0 08-21-2008 05:51 PM


All times are GMT -5. The time now is 06:08 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.