Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-16-2009, 07:10 AM #1
daniella daniella is offline
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daniella daniella is offline
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Hi I am sorry about you rain as well. I don't have the appearance issues of rsd but I do have rsd and was dx with this as well as PN from many doctors. The first doctor who dx rsd was my neuro but then I also was dx by pain management doc who deal with rsd. I also didn't have an injury though was active in exercise before this but went to the orthopedic right away when the pain started with no fracture or break. I'm not sure where you live but I would try to find a PM doc who deals with rsd to get going on treatment asap especially since you have had extensive testing. Feel better
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Old 02-17-2009, 10:43 AM #2
sbvcrn sbvcrn is offline
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Quote:
Originally Posted by daniella View Post
Hi I am sorry about you rain as well. I don't have the appearance issues of rsd but I do have rsd and was dx with this as well as PN from many doctors. The first doctor who dx rsd was my neuro but then I also was dx by pain management doc who deal with rsd. I also didn't have an injury though was active in exercise before this but went to the orthopedic right away when the pain started with no fracture or break. I'm not sure where you live but I would try to find a PM doc who deals with rsd to get going on treatment asap especially since you have had extensive testing. Feel better
Thank you all for responding. My only problem is the burning, tingling, skin sensitivity. No edema (swelling), redness or other color changes,now or ever. Began in left arm, now pretty much all extremities. Originally thought to be peripheral neuropathy but all tests for that negative. I have no motor problems, exercise, etc. Do not have horrible pain as yet but discomfort increases as the day goes on and generally is increasing over time. I find vicodin helps somewhat, also am taking neurontin which possibly helps (seems worse without it). Some days better than others. Also another injury which happened five years ago...auto accident in which I was rear-ended. Shortly thereafter developed cervical dystonia which I receive Botox injections every three months but the burning, etc. started 3 years after the accident. So the torn rotator cuff actually occurred shortly before the burning, etc. But wonder if the other could be contributing. I have seen 3 neurologists...one a movement disorder specialist for the cervical dystonia and botox...he isnt much interested in anything not relating to his specialty, saw a peripheral neuropathy specialist who did all the tests for neuropathy and he had nothing to say, see a local "general" neurologist who is pretty much more or less typical neurological stuff...MS, stroke, migraines, etc. So, need to find someone possibly with knowledge of crps. Know I sound like a nut to my PC and my general neuro because nothing is "seen". At least with the cervical dystonia there are definite symptoms. So guess I will keep on eating well, exercising and trying to make do and of course researching crps. Thanks all for allowing me the venting and the welcome to the BB.
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