Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-23-2009, 12:41 AM #11
loretta loretta is offline
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loretta loretta is offline
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Hi Mom,
It's Loretta, my laptop is still down. So I'm on my husbands computer and got a temporary password so I could get on line. I forgot my password? surprise Spent 4 hours at the er yesterday-have terrible painful sores in mouth. My Dr. wanted me checked out right away.He's afraid my infection in lesions didn't get cleared up and got in bloodstream. I'm afraid too. After 4 hours, they said it would be another 3 hours! We left. I had to go lay down in car and my husband waited. We'll start over tomorrow. My blood pressure was low and I just couldn't take waiting any longer. I'll write later. I'll get in somewhere tomorrow. I'm glad you like the Cymbalta, I am on it too. and works good for me. Take care, loretta
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MominPainRSD (02-23-2009)

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Old 02-23-2009, 08:52 AM #12
MominPainRSD MominPainRSD is offline
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Oh, Loretta, I am SO sorry to hear how you're struggling. I am worried about you. Please keep in touch and let me know what they do to help you. Please take care of yourself. Be very careful with that low blood pressure. I hope to talk soon!! Call if you need me!!! Love....
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Old 02-23-2009, 10:22 PM #13
loretta loretta is offline
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Hi Mom,
Thanks for the sweet message. Did you go thru with the block for both feet? I remember the probing questions regarding this next treatment and you were going to try and see the Dr. before he procedure and ask the difference betweentwo treatments. Did that happen. How is your left hand? The excessive sweating is common to most of us. I hate it too. Thankfully, I don't have the 'touch' sensitivity. I attribute that to my long term p.t. and also my own continuation of p.t. The sweating is tough here in Arizona! smile
I'm thankful to be able to use a fan year around. I also, like you, get the bright redness just from any water movement over my skin. The fan helps immediately after getting out of shower. Also, baby powder helps, keep the skin dry and fro sweating more. I use i daily. Please let me know how the procedure went?
This morning I called Barrows Neurological Instiute and asked for an appointment for RSD Doc. My Dr. had back surgery there a couple years ago. It's known around the country and world and one of the best. I was devasted when they said they were no longer accepting RSD patients. They had one specialist and he moved on to the VA Hospital here in Phoenix. I have his name if anyone qualifies for VA. I also called the Mayo Hospital where they did he ketamine studies a few years ago and they no longer treat RSD. They do have one orthopedic Dr. that treats it in the foot and ankle, but not if it has spread anywhere else. My next plan is to contact the hospital where I spent 4 days about 4 years ago in ICU and remember I had two neuro Drs. familiar with RSD and try and get in to see one of them. My Neuro is moving. Have a few months before he moves. My mouth seems to be getting better. I think now, it's just canker sores. The show'The Doctors' discussed a medicine by 'prescription only' today that is good for that, so will call my dentist tomorrow.
Take care, thinking of you everyday. Love, loretta
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Old 02-23-2009, 10:28 PM #14
loretta loretta is offline
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Hi Ali,
How are you doing since your fall on your left hand? I just mentioned to 'Mom' about using a fan after taking a shower to keep from sweating so much. You can direct the fan away from you, but just the movement in another direction gets the air moving and really helps the sweating problem, you don't get the skin sensitivity. I use one while sleeping also, but not directed on me. We have air condition in the house, but need more than that to help, especially after shower or bath. And using baby powder helps absorb heated skin. You are so sweet, thank you for all your messages and the time you take to write everyone with such kindness. Love, Loretta
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