I am sorry if my last post was a bit too much

The 10 year anniversary is April 1 for me and I wish I could say april fools lol. I am in total agreement with all of you about how the meds seem unaffective on the RSD. Just kinda got off track thinking about what helps me to not dwell on how bad I always feel.

Hope everything works out for ya lordwood.

I am thinking of you today and hoping you are feeling better.





Ada

check in with us and let us know how you are doing hope to see you soon
hang in there buddy

carrie

Carrie, I'm going to bump this up, because we haven't heard from Lordwood.
Lordwood if you can check in and lets know you are ok. WE are concerned.
Di

good im worried about himlorwood i hope that he is ok
carrie

Lordwood,

I really hope that you are doing OK. As the others have said - we are all really worried about you so please check in with us and let us know how you are doing when you can!!

I really wish that I could offer you some help and relief from your symptoms but I can't unfortunately - just know that I care and am here for you if you need someone to talk to !

Alison.

lord please check in i hope we can talk some more i enjoyed

Hi all!! I can't remember the date, but I know that Lordwood was due to start his infusions around now. Perhaps that is why we are not hearing from him? Let's keep him in our thoughts and prayers and hope that he checks back in with us with some promising news after his treatments. The poor dear desperately needs some relief.

After the long haul of jumping when they tell you to jump and going through all the hoops finally i learn of my treatments time. While i am sure most of you know the medical field does not work as it should and they are slow as heck even when it is important. My treatment is scheduled for April. One test result didnt get to them as it should of but within the week it should be to them and than i'll get the exact date but in the mean time they wanted me to know it will be April. I think the meds affect patients differently and while i have done enough to prove over and over they have no power or effect whatsoever on me for others it can be a different story. In the mean time to get my mind off the pain and get away from the depressing and lonesome prison of my house i have ventured to my local library to be a volunteer which librarian work was a like of mine even when in school it was a way to get away from the everyday aspect of everything. Now of course after my lungs started up and made it i couldnt breath i had to diminish that help which depressed me more till my doc put me on high doses of xanax and we learned the breathing issue was anxiety so i was able to return to the library and have been working there as often as possible. Sadly the pain within my lungs doc and i still fear is the rsd, but the good view point is the breathing is not effected by the rsd yet and it was just something as simple as the anxiety. Why anxiety appeared now when i should have had it back in 2007 no one knows and why just all that sudden but anxiety can do that. Anyway so i retreat to the library and volunteer alot to keep myself busy and away from sitting at home in realization of it all. I hope all of you are doing well and will be on more often. Definitely to let you know when i learn the exact date. I thank you all for your responses and hope to hear from you all.

Great news on the treatment and the Library. I love books but I find it very hard to sit and read. My mind doesn't stay on anything for very long. I think it's great that you can do the volenteer work though. It does help keep your mind off of things.

It's good to see you here and I do hope you stick around. It will be interesting to hear what they do for you in the treatment and how it works for you. People learn from experiences of others.

Glad to see you back,
Ada