Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-07-2014, 07:48 AM #1
Brambledog Brambledog is offline
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Brambledog Brambledog is offline
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I've only come across this thread today after melissa's post...but it's very interesting and I am wondering what people think about it in relation to IVIg as a treatment for CRPS? More and more, CRPS seems to be linked to auto-immune system failings, and having coeliac disease myself and arthritis, it's easy to think that perhaps my immune system is just cruddy. I also had glandular fever as a young woman, and was very poorly for nearly 2 years.

Any thoughts?

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 02-12-2014, 04:33 PM #2
Erika Erika is offline
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Melissa,

Sorry that it has taken me this long to respond. Apparently I''m easily confused these days and sent a PM to someone else, thinking it was you .
They have responded and now it is all sorted out.

I too have been diagnosed with Parvo; and have been dealing with the joint symptoms for the past 4 months. The docs are looking into using IVIG as a therapy to help the body get over the virus.
Have you had any therapy suggestions?

I posted a thread on the MS forum (was diagnosed over 30 years ago and have SPMS).
http://neurotalk.psychcentral.com/thread200717.html

With love, Erika
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