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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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10-20-2009, 12:47 AM | #1 | |||
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Hi chef,
I copied your post and placed it on the main RSD forum - it will get more views & replies there. http://neurotalk.psychcentral.com/forum21.html
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04-13-2013, 04:56 PM | #2 | ||
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- so far for me: VERY soft flannel/brushed flannel, velvet/velveteen (I'm going to look silly come summer though), silk, satin.BEST: bare leg/foot, no blankets/anything touching. My Chai Tea helps me to relax - with one piece of chocolate as my reward for surviving another hour/day ;-); my sound machine also works to distract me, I can focus on the repetitiveness-that's calming as well. THANK YOU FOR THE WONDERFUL IDEAS! Please? Suggestions for when it's burning? I would appreciate that so much! |
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04-15-2013, 01:02 PM | #3 | |||
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My Dr. has me taking 750 mg. of magnesium and thanks to Ms.D's reply now I know why! I did not know the connection. It must help with the burning pain, but also helps with constipation when I take pain meds. I have a "TENS" unit that helps and oddly enough a warm heating pad over flannel helps me too. I have yet to figure what sets off the burning pain because I guess I'm fortunate that it comes and goes.
It's all such a mystery - We need a cure! |
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05-01-2009, 12:28 PM | #4 | ||
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Thanks for your post, and I hope to get to know you! Conni |
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"Thanks for this!" says: | MominPainRSD (05-09-2009) |
05-16-2009, 05:29 AM | #5 | ||
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Has anyone else tried spray antipersperant for the sweating like ASB mentioned ?
That never dawned on me ! Is it better to let the sweat out though ? |
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"Thanks for this!" says: | full_moons_of_hope (07-06-2019) |
02-23-2009, 11:10 PM | #6 | ||
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I have found lighter denim pants at Fashion Bug that are more comfy to me. I have RSD in my foot/ankle/calf and the heavy denim drives me bonkers!
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"Thanks for this!" says: | Amelia Earhart (09-22-2014), Azaila (02-07-2010), DejaVu (09-09-2015), MominPainRSD (02-24-2009), Winter7 (10-17-2014) |
02-23-2009, 11:46 PM | #7 | |||
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I found cotton t-shirts that are big and loose feel best. All of my t-shirts are men's. I wear Danskin pants. They're uber soft and comfy! I have a couple of pairs of yoga pants I picked up at walgreens that are the same. With the ones I picked up at walgreen's, you have to remember to follow the wash and dry directions on the label or they will shrink! LOLOL I picked up some men's tube socks, in black which is my fav color, and they're soft and comfy. I wear 2 pair on each foot cause it helps cushion my feet and also helps them stay a little warmer.
Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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"Thanks for this!" says: | Azaila (02-07-2010), crpsspoonie12 (02-15-2015), DejaVu (09-09-2015), freebird36 (11-22-2013), MominPainRSD (02-24-2009), moosey2me (11-13-2013) |
05-12-2010, 02:30 PM | #8 | ||
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"Thanks for this!" says: | stillsmiling (03-07-2018), wswells (05-26-2010) |
05-15-2011, 11:12 AM | #9 | ||
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01-27-2010, 11:47 PM | #10 | ||
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I wear light athletic pants for the same reason. Jeans add may too much pressure on the top of my foot. I can only wear them with shoes on. PJ pants are the most comfortable so far.
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"Thanks for this!" says: | bluekrikit (12-27-2015) |
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