Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 04-08-2014, 11:49 AM #1
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Default

Quote:
Originally Posted by Luthier View Post
I know right!?!
one of those little quark... we all share kinda like ice or rough clothing.
Llynnyia is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (11-09-2015)
Old 04-09-2014, 11:47 PM #2
Phaedra's Avatar
Phaedra Phaedra is offline
Junior Member
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Phaedra Phaedra is offline
Junior Member
Phaedra's Avatar
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Cool pajama jeans

Has anyone tried the pajama jeans? I cant wear pants as this just plain hurts all the while I have them on. I ordered some dresses from zulily can't wait till they get here. Can any one wear flip flops or sandals? Ladies this next question is for you. How do you shave your legs? Help please!!!
Phaedra is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (11-09-2015)
Old 04-10-2014, 01:31 AM #3
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Default

Quote:
Originally Posted by Phaedra View Post
Has anyone tried the pajama jeans? I cant wear pants as this just plain hurts all the while I have them on. I ordered some dresses from zulily can't wait till they get here. Can any one wear flip flops or sandals? Ladies this next question is for you. How do you shave your legs? Help please!!!
Dresses and skirts make me happier too. Chiffon is really light and nice if you find something you like in that material, I advise getting it.

Pants when I have to wear them I make / buy pallazo pants really big fluffy legged. As for jeans, I can only wear them on my best days. Even then walk through the door of my home and off they come. Stretchy hurts so I buy those type of things a size larger then normal.

Shaving legs it took time...

I should say this first get Coochy Cream http://www.coochyshavecreme.com/ or a similar thing. I advise the greentea. It makes the friction of shaving much much easier to endure.
Yes I know embarrassing to go into an adult store ect. but this is one of the things that makes it possible for me to shave my legs/ have my legs shaved depending on pain that day.

That and a Blade with five razors and a large head to reduce irritation and condensing the pressure on a small area. Always have a sharp razor never use if it starts pulling. This is what I buy http://www.gillettevenus.com/en-US/p...nsitive-razor/

I normally start with sitting on my bath stool under really hot water to get my leg as relaxed as possible and desensitized. Then from bottom first I start shaving that way if I need to stop, normally at least my lower legs are done.

When I first started to shave again I had to shave with the grain now I can shave against like normal. It just took a lot of desensitizing.

I remember, I told the ssi/ssd doctor at my evaluation, that I could finally shave my legs and he seriously didn't get what an accomplishment that was.


Flip flops complicated answer: no because they push you off balance, by making you tense and curl your toes. Yes because some times with swelling they are the only thing you can get on. Until my honey bought me these http://bedrocksandals.com/ . I had trouble with flipflops.

Good Luck!

Last edited by Llynnyia; 04-10-2014 at 01:37 AM. Reason: complete answer
Llynnyia is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (11-09-2015), Phaedra (07-20-2014)
Old 05-28-2014, 08:06 PM #4
newtboots newtboots is offline
Newly Joined
 
Join Date: May 2014
Location: UK
Posts: 4
10 yr Member
newtboots newtboots is offline
Newly Joined
 
Join Date: May 2014
Location: UK
Posts: 4
10 yr Member
Default

My partner suffers from CRPS in her right hand/arm. As previously mentioned she also uses a sleeve style support bandage when going outside. Not tight but not so loose as to move around. This has its advantages. It really helps fend off those evil breezes, whether from nature or vehicles driving past etc.

She deliberately does not disguise it as anything other than a bandage so that it acts as a visual cue to those unaware of here condition. When bumped on her affected limb (in the street/shop or interacting with younger members of the family who forget/can't understand) she is often rendered unable to move or speak for a while, often just sitting down in unusual places.

People naturally try to help someone who appears injured. For this reason she also keeps a card with a short explanation of her problems in the front of her purse that she can give to people when this happens. It says "I have a painful right arm (CRPS). Please do not touch it. I do not need an ambulance and will be ok soon. Please call (this number) using my phone. Thank you for wanting to help."

I don't know how common this reaction to stimuli is with the rest of you but she found it has stopped incidents where she has been hurt further simply by another's kindness.
newtboots is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (11-09-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lifesavers...AFSP Newsletter Alffe Survivors of Suicide 1 02-23-2009 06:47 PM
Pets are therapeutic and lifesavers: tjsmith890 Pets & Wildlife 6 04-08-2008 12:30 PM


All times are GMT -5. The time now is 10:05 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.