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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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I discovered for me that direct heat is too much on my CRPS limbs, i found it aggravates my rashes. I gave up Epsom salts baths. I use magnesium oil instead. I line my bed with heating pads when I cannot get warm & snuggle next to them, but I avoid having them touch my CRPS limbs.
When the fire is insanely bad I line my bed with dollar store ice packs (in zip bags-the packs can leak) wrapped in tea towels. I keep the covers off my legs with a stool & slide in to my makeshift refrigerator without having cold packs directly on my limbs. It isn’t as fast relief, but it works well. I keep six of these big packs flat in my freezer-they last for hours. |
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"Thanks for this!" says: | full_moons_of_hope (07-06-2019), ShaggyChic_1201 (11-17-2019) |
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My latest helpers:
Daily meds: lyrica, celebrex (AM & PM) then hydrocodone & tizanidine (PRN, up to 2x/day), lidocaine patches (up to 3 at a time, on the areas that are the worst at any given moment) PT/Exercise: Desensitization therapy, light exercise (water aerobics, light yoga, walking the dogs, even household chores) but also listening to my body and cutting myself slack when needed Other: Heating pads, heated blankets (I keep both at home and at work, as well as upstairs and downstairs in my house), hot baths, fuzzy socks, soft clothing and/or shorts, distraction therapy (family, friends, solitaire/yahtzee on my phone, social media, reading, tv, etc). To the person who said loose shirts - check out the Ava & Viv section at Target - in the plus size area. even if you're not plus sized they are really loose through the stomach and a 0x works well even if you're a size 8 or something. And they're $8 each and super soft and lightweight. |
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"Thanks for this!" says: | full_moons_of_hope (07-06-2019), Lyla Grace (11-04-2020) |
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Junior Member
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