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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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cake
like you i do the same thing waiting to sleep and next thing i know its 4-5 kids get up at 615 . but i do try to take my lunesta but even then sometimes i still dont sleep im weary of the mag and calicam as i have kidney problems and thats all i need is a nother kidney infection carrie |
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#2 | ||
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Magnate
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I take calcium and magnesium for stronger bones and I heard that magnesium helps with muscle or joint function but make sure to get the kind that can be absorbed and also with calcium you need vitamin d.
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"Thanks for this!" says: | Mslday (03-02-2009) |
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#3 | |||
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Magnate
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What I seem to notice that keeps me away at night also it the sounds, smells and feeling of things. They seem overwhelming at times.
My kids got me a really nice mattress cover for Christmas because my bed felt too hard. Now it feels like I am sinking into it too much. Smells, if there is something smelling strong in my house I can smell it even more it seems. I can't cook beans in the crockpot at night because the smell seems overwhelming. Sometimes the smell of my perfume bottles are overwhelming at night. I have to get up and move them. Simple noises sound like they are magified. I was just wondering if this is something some of you might be dealing with that adds to not being able to sleep. Ada |
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#4 | ||
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Member
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I agree, Ada, that those things definitely don't help.
That's why I get out of our bed and go and sleep on the lounge. My hubby tends to snore and even the slightest noise or movement from him keeps me awake. Or if the fan is on in our ensuite bathroom. Or if I can hear the dishwasher. I've had times where I've slept in one of my kids' beds (if they're at a sleepover- their beds are so much better than the lounge!) but they have a ticking wall clock and although I take the clock out into another room (and often put a cushion on top of it! ![]() ![]() I'm not sure if this is connected to the rsd. I reckon it's more a general insomnia issue- ie people with insomnia but NOT rsd would have the same problem- but it definitely doesn't help when we're already struggling to sleep at night. Daniella-thanks for the info on the Vitamin D. I go thru phases with my vitamins. I get so sick of taking handfuls of tablets every morning and night so tend to get slacker with my vitamins and just take my prescription meds, but I know that the vitamins are just as important so I need to re-introduce them all into my bedtime routine. x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS. |
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#5 | |||
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Magnate
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Funny you mentioned the clock. The boys have one in their room and when they aren't here, I sleep in there bedroom. There bed sometimes feels better. I took their clock off of the wall and laid it in the living room many times so I can sleep.
I don't know if it really is insomnia issues too. You could be right. Ada |
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#6 | |||
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i also have to problems with the sounds smells and lights . i most of the time end up on the couch i guess since its kinda harder and DH isnt here tossin and turning its easier to be kinda comfy. i wish that i could find something that would work for sleep and keep me asleep ..
carrie ps we have no ticking clocks ![]() |
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"Thanks for this!" says: | Mslday (03-02-2009) |
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#7 | |||
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Member
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It has taken me every day until today to remember what helped me to sleep even better than any sleeping pill or anti-anxiety pill a doctor could prescribe & better than Melatonin ever worked for me also. It is Kava-Kava. But I am allergic to it. I broke out in huge itchy welts. But before that happened, I slept like a baby for a few weeks. It had to build up to a certain amount in my body before the allergic reaction set in. I was pretty despondent for awhile afterwards because at that time sleep deprivation was a big thing for me & it was caused due to Fibromyalgia pain at that time. I didn't have RSD as of yet.
Now I don't seem to have a problem sleeping at all. It is all I do anymore. And the damn Medicare DX program I changed to won't pay for Provigil without my having had a damn sleep study done & using a CPAP/BIPAP machine. Can you believe it???? So now I am back to sleeping all the damn time again & being bitchy & miserable. They also won't pay for something else I need but now have to buy over the counter. So in the long run they were not cheaper. And I asked before changing to this company if they paid for both of those medications. And the answer was yes. They lied big time & are now costing me more than if I had stayed where I was. Well I am going back to AARP next year for sure. They paid for everything my doctor prescribed. I am going to lodge a complaint against this group. If anyone wants to know who they are, well they are America RX. They suck!!! They won't pay for everything hubby needed either, so he has had to change to a different drug. Ticks me off. Does anyone know of anything legal we can take to stay awake without resorting to drinking any of those damn drinks like say "Red Bull". I do not want to have to resort to anything like that. Well ya'll take care...... DebbyV |
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#8 | |||
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Member
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Quote:
I too have become hypersensitive to smells over the past couple of years. Recently I changed all of my soaps personal body, laundry and household cleaners to natural products without all the added perfumes and chemicals. I even have a special face cream compounded for me without all of that awful stuff in it. It has made a big difference. I do however like the scent of lavender and use it frequently in the bath and bedroom. To help with really bad household odors like cooked beans for example I like to put a pot of mulling spices with cinnamon and cloves on the stove. Just be sure to keep it on low and check frequently for evaporation. I don't hear so well now due to my tinnitus, but that is definitely something that can keep me awake. It can become very loud at night when everything else is quiet. I have read recently that any light source can be bad for your sleep, that one should have complete darkness with no lights even from clocks or other other electronics. I don't know how much truth there is to that, if I recall correctly it is thought to help with the natural production of melatonin by our bodies. Just a few thoughts...thanks for your comments. MsL |
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#9 | ||
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Junior Member
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Hi every one,
unrestful sleep is definately an issue for me also. My husbands snoring (i was never bothered by it before) I like others migrate to the sofa. I can actually hear lightbulbs hissing or buzzing. Shutting them off it goes away. My husband it Electronic eng....he said that frequency is audible to people but ussually isn't unpleasant or goes without recognition. I know RSD causes some hypersensitivities from my experience. Including scented things. I use alcohol on a damp cloth to dust with it leaves the house with a neutral smell. Also we purchased an ionizer and run on very low level on the floor I am not occupiing. Back to scents or chemical products. We now never buy anything that has a blue color. Cobalt is used to make the color. I do not know how bad it is for health/rsd but I scrutinize every product I buy now. I would like to know more about that supplement coctail at bedtime. Several months ago I took melatonin at bedtime. One did nothing and 2 helped me fall asleep at somepoint but I woke up with a hangover groggy all day. So I wonder if the combination of brain supps. would be better. Thanks for listening, hope you all get restful sleep |
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"Thanks for this!" says: | Mslday (03-07-2009) |
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#10 | |||
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Magnate
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I had side effects from Kava Kava years ago. Same with St. Johns Wort.
I have a collection of perfume bottles so I bought a showcase to put them in to keep from smelling them. I couldn't give them up. But that one night, I had one that was driving me crazy and I had to go find it. It was sitting out though. My sense of smell and feel have multiplied but my taste sure hasn't. At times I have no appetite at all. I have learned though like someone said to eat a bite before bedtime. That also seems to help. Ada |
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"Thanks for this!" says: | Mslday (03-07-2009) |
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