[lexiemae1]

Does burning pain always accompany Rsd in the 1st 6 months or not??

[GalenaFaolan]

Nope. Some have it some don't. For some it comes and goes and for others it's constant. When I first had rsd I didn't have any burning at all. I don't remember when I felt the first burn now. I do remember it was quite awhile! I had all the other rsd symptoms but no burning so was able to fool myself a little while that maybe I didn't have it despite all the other stuff. LOL

Hugs,

Karen

[lexiemae1]

Thanks for the quick reply.. Was beginning to think I didn't have it.. But my pain specialists said according to bone scan that Rsd usually presents itself with osteoporosis on the scan..

[Martg1946]

Originally Posted by lisamweldon

Does burning pain always accompany Rsd in the 1st 6 months or not??

I have had RSD for about 6 months or so, I have it in my foot and leg the worst, I do have the burning, it feels like someone is holding a match under your skin...not constant but the majority of the time...ANYTHING you want to know about RSD is on this site and really nice people..

[angelrsd]

hi and welcome glad that you found us. i always have had the burning and yes my bone scan at 6+mnths was also positive for oesto..but there are wide aray of symptoms like i dont have the huge swelling with my rsd but have everything else.. color changes sweating,burning electrical pain etc...

welcome again and so sorry that you have this horrible diease i hope that you find comfort here.

carrie

[GalenaFaolan]

Originally Posted by lisamweldon

Thanks for the quick reply.. Was beginning to think I didn't have it.. But my pain specialists said according to bone scan that Rsd usually presents itself with osteoporosis on the scan..

Actually the bone scan means nothing. Depending on each person's body rsd will show up on a bone scan IF you have osteopenia or osteoporosis due to the rsd. I had one scan done 8 months after getting rsd. It came back normal and showed the healing fracture in my kneecap which I didn't know I had! At that point I had rsd from hips down. My 2nd bone scan was done exactly 1 yr later and it too came back normal. At the time of the 2nd one I had full body rsd.

I've talked to some people who've only had rsd for 2 months and their bone scans "lit up" showing osteo on the bone scan. Others have had rsd for years and scans are still coming back normal. There is no test to "show" you have rsd. Physical symptoms and ruling out every other possible diagnosis is how the rsd dx is usually arrived at. I bet if I got a scan now that it would still be normal.

Though we all have the same dx(diagnosis) no 2 of us will present it the same way. We share some "common" symptoms, like pain,burning,muscle spasms,etc. None of us will have them with the same intensity. Some people will experience things really bad, others not so much and others somewhere in the middle. Because we are all unique, our systems all work differently.

Take the whole sensitivity issue. Some docs(ones who,imo,don't know as much as they should except for a little they read in some book)who say you can't have rsd if you don't scream when someone touches you. WRONG! You can have touch sensitivity or air sensitivity or both. For myself, I only had air sensitivity and didn't develop touch until 2 years ago. Some people have no sensitivity at all at first but will develop it later on.

I wanted you to know the "truth" about some of these common rsd things. Sometimes it's hard to know what's right and not. I found in the beginning by talking to other rsd'ers I got the truth from them about it all and the whole thing wasn't quite as scary or overwhelming to me from then on.

Big Hugs,

Karen

[angelrsd]

i totally agree with karen.
like the touch thing. mine can go from not hurting to be touched to OMG dont get near me. like she said everyone is differnt this goes the same with treatments. like blocks working for one and not the other etc...my suggestion to you is that research and knowing what is goin on with your body is key to this diease or any other diease in my opioin beause dr's sometimes just want you as a geunie pig and thats not so good at all for us

i hope that this info helps
carrie

[lexiemae1]

Thanks guys and girls for all the info I just registered on here but have been reading everything I can obtain from all of u and everywhere else on the net.. I will get back to u all right now I am at work OOPS!!!!

[used to be]

Originally Posted by lisamweldon

Does burning pain always accompany Rsd in the 1st 6 months or not??

Hello and Welcome, I've had RSD for 3 years but never had the burning or sensitivity. I did have the swelling, sweating, color change, temperature change ( went from too hot to toooooo cold!!!). Also, I had massive bone loss on x-ray and bone scans. I was actually told by 1 doctor that the bone loss was my own fault because I didn't put weight on my foot!!! I would have loved to but the gut wrenching pain wouldn't allow it. I'm glad your doctor seems RSD informed. Hope he'll be able to get you better soon...Jeannie

[ali12]

When I first developed RSD, I had more of an intense shooting pain rather than the burning pain. It took about 4 weeks or so for the burning pain to start.

From what my Pain Management Doctor has told me, the burning pain is the most common symptom of RSD although not everyone gets it. There are varying degrees of RSD pains and no two people are the same which makes diagnosis and treatment really hard unfortunately.

I'm sorry that you are in pain - please know though that we are here for you and if you need anything, please don't hesitate to ask!!

Sending pain free hugs your way,
Alison.