Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-28-2009, 09:33 AM #1
jenno jenno is offline
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Join Date: Mar 2008
Posts: 124
15 yr Member
jenno jenno is offline
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Join Date: Mar 2008
Posts: 124
15 yr Member
Default Infection connection -- please research!

I BELIEVE THAT IT WOULD SERVE US ALL WELL TO CONSIDER AN INFECTION CONNECTION IN RSD, BE IT LYMES OR ANOTHER BACTERIAL OR VIRAL COMPONENT. FINDING RESEARCH ABOUT RSD IS EXTREMELY LIMITING, BUT IF WE ARE WILLING TO EXPAND OUR THINKING TO INCLUDE SIMILAR ILLNESSES (FIBRIMYALGIA, CHRONIC FATIGUE, AND LYMES TO NAME A FEW), THE COMMONALITIES ARE SIGNIFICANT AND MAY JUST PROVIDE MUCH NEEDED INSIGHT INTO THIS TRAGIC SUFFERING.

I EXTRACTED THE FOLLOWING FROM A DOCUMENT. IF YOU WOULD LIKE TO READ IT IN ITS ENTIRITY, YOU CAN GOOGLE:

THE MARSHALL PROTOCOL FOR TREATING CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA: HOPEFUL RESULTS EMERGING

I AM NOT PROMOTING THIS PROTOCOL BUT AM ENCOURAGED TO LEARN THAT CHRONIC PAIN RELIEF IS BEING REALIZED WITH ANTIBIOTIC TREATMENTS. ALSO, IF YOU TAKE THE TIME TO GOOGLE LYMES MISDIAGNOSED, YOU WILL DISCOVER MUCH TO CONSIDER.

I PRAY THAT THE MANY BRILLIANT MINDS WHO VISIT THIS FORUM WILL PULL TOGETHER AND INVESTIGATE THIS CONSIDERATION.

JEANNE

Quote:
Question: A number of patients with Chronic Fatigue Syndrome (CFS), Fibromyalgia (FM), and other chronic illnesses report they're finding success following your sarcoidosis treatment protocol. Could you explain what CFS, FM, and sarcoidosis patients might have in common that could explain this?

Trevor Marshall, PhD: Sarcoidosis is a Th1 inflammatory diseas which can damage the lungs, heart, eyes, brain, liver, kidneys and soul. Patients are still being told it has no known cause and no known cure.

Tiny "pleomorphic" bacteria have been photographed living within the cells of the immune system of sarcoidosis patients. Emil and Barbara Wirostko produced stunning electron microscope photographs of immune phagocytes each containing hundreds of tiny bacterial forms, around 0.01 to 0.025 microns in diameter, living in colonies within the very cells (phagocytes) which are supposed to kill these bacterial parasites. One of the Wirostko photographs can be found at http://www.autoimmunityresearch.org/wirostko-fig3.jpg It is important to understand that these bacteria are "coccoid" (round, and very, very small), 10 to 100 times smaller than the shapes these same pleomorphic bacteria will take when they enter the bloodstream.

We found that you can measure a hormone (in the blood) resulting from the Th1 inflammation produced by these tiny bacteria, and that it is elevated in Sarcoidosis patients. It is also often elevated in CFS patients, indicating that the inflammation of CFS is often very similar to that of Sarcoidosis.


Trevor Marshall, PhD: I would just say don't take "no" for an answer. For the last 100 years sarcoidosis patients have been told that there is no known cause and no known cure for their disease (much the same prognosis being given to CFS and FM patients). The diagnosis of chronic sarcoidosis is regarded by pulmonologists as irreversible, they know their patient is dying, and that it is just a matter of time.

Yet the sarcoidosis folks who have been helping us develop our protocol, are becoming healthy again. Not just 10 percent, or 25 percent, but close to 100 percent are recovering their lives and their families. They have variously reported regaining cognitive focus, stamina, and stable gait, and resolving chronic pain, paresthesias and visual disturbances. Some have been able to discard wheelchairs, braces and supplementary oxygen.

"It is not the antibacterial therapy" that is helping these patients, say 'the experts,' "it is just spontaneous remission." Well, personally, I don't care what they call it, most of us will take this antibiotic-induced "spontaneous remission" any day, as long as it gives us back our health, our lives and our families. Don't take "no" for an answer.
to read more please follow this link
http://www.prohealth.com/library/sho...784&t=CFIDS_FM

Last edited by Chemar; 02-28-2009 at 09:46 AM. Reason: adding "quotes" and article link for copyright compliance
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